It appears that @robles_jdaniel didn't bother to read the @SkeptInquirer article I posted in my first Tweet; so I will repost it here. My other response is: Be careful what you wish for. 1/ https://www.csicop.org/si/show/stanislaw_burzynski_four_decades_of_an_unproven_cancer_cure …https://twitter.com/robles_jdaniel/status/999120044587012096 …
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Now let's get back to
@ericmerola's movie. When I first encountered it, I was a little less harsh on#Burzynski than the years have led me to become, but I still thought his treatment probably had no anticancer effect and that he was scamming patients. 5/https://sciencebasedmedicine.org/stanislaw-burzynski-bad-medicine-a-bad-movie/ …Show this thread -
I also heaped scorn on
#Burzynski's claims that he was doing "personalized gene-targeted cancer therapy." In reality, he was ordering Caris tests and making shit up, throwing together expensive targeted therapy and chemo. 6/https://sciencebasedmedicine.org/stanislaw-burzynskis-personalized-gene-targeted-cancer-therapy/ …Show this thread -
Then I learned that
#Burzynski had figured out that one antineoplaston was a prodrug of an orphan drug and was starting to use that drug off label as his "miracle cure.". 7/https://sciencebasedmedicine.org/stanislaw-burzynski-antineoplastons-and-the-orphan-drug-sodium-phenyl-butyrate/ …Show this thread -
Over the years I've documented the stories of many patients whose desperation led them to
#Burzynski. For instance, here is the sad case of eán Ó’Laighin. 8/https://sciencebasedmedicine.org/dr-stanislaw-burzynskis-antineoplastons/ …Show this thread -
And here is the even sadder case of Amelia Saunders, first how
#Burzynski lied to her parents. 9/https://respectfulinsolence.com/2012/11/30/a-response-to-the-father-of-a-burzynski-patient/ …Show this thread -
Then, how it turned out that, while
#Burzynski was convincing her parents that his ANPs were working against her tumor, her tumor was actually progressing. 10/https://respectfulinsolence.com/2012/12/12/sad-news-about-a-burzynski-patient/ …Show this thread -
Even more sadly, Amelia Saunders died less than a year after she had been diagnosed with her brain tumor. 11/ https://www.facebook.com/ameliasmiracle/posts/405566886190045 …
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It turns out that, if you examine
#Burzynski's "success stories," they are almost never really success stories. Anyone with a decent knowledge of oncology (like me) can figure out that it wasn't his treatment that resulted in good outcomes. 12/https://sciencebasedmedicine.org/stanislaw-burzynskis-cancer-success-stories/ …Show this thread -
Indeed, pediatric oncologists and intensivists in Houston hate
#Burzynski because his ANP treatment is very toxic (it can cause life-threatening hypernatremia) and they frequently have to try to save patients that he's poisoned. 13/https://respectfulinsolence.com/2013/06/04/stanislaw-burzynski-versus-the-bbc-2/ …Show this thread -
Oh, and if you're thinking of mentioning the second
#Burzynski movie (which I like to call "Burzynski II: Electric Boogaloo") by@ericmerola, don't. I reviewed it too. It's even dumber and more full of misinformation than the first Burzynski movie. 14/https://sciencebasedmedicine.org/stanislaw-burzynski-propaganda-versus-news/ …Show this thread -
Through it all,
#Burzynski has cynically used dying cancer patients as cannon fodder in his war against@US_FDA and the Texas Medical Board. 15/https://sciencebasedmedicine.org/stanislaw-burzynski-trying-to-relive-his-success-beating-the-rap-in-the-1990s/ …Show this thread -
Through it all, there are frequently stories about
#Burzynski in the press that show false balance. 16/https://sciencebasedmedicine.org/stat-news-false-balance-about-stanislaw-burzynski-and-his-disproven-cancer-therapy/ …Show this thread -
Depressingly given all the years it's been at it, last year the Texas Medical Board, although it managed to enter a judgment against Burzynski, failed to strip him of his medical license and only had his practice monitored. 17/https://sciencebasedmedicine.org/texas-medical-board-lets-off-stanislaw-burzynski-lightly/ …
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Sadly,
#Burzynski is still up to his old tricks. providing false hope and charging them hundreds of thousands of dollars for his ineffective treatment. 18/https://respectfulinsolence.com/2018/05/01/how-is-it-that-in-2018-cancer-stanislaw-burzynski-is-still-preying-on-desperate-cancer-patients/ …Show this thread -
Unfortunately, although it makes me feel good about humans to see how willing they are to help, the generosity of strangers frequently provides that money through social media fundraising. 19/https://respectfulinsolence.com/2018/05/03/how-is-it-that-in-2018-cancer-stanislaw-burzynski-is-still-preying-on-desperate-cancer-patients-update/ …
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As for
#Burzynski's data, although he's published some of his results, he's never published any convincing evidence. Here's one example. 20/https://respectfulinsolence.com/2014/04/17/stanislaw-burzynski-publishes-42-5-of-one-clinical-trial/ …Show this thread -
Here's what is perhaps
#Burzynski's best attempt to show that his ANPs work. It is utterly unconvincing. 21/https://respectfulinsolence.com/2014/06/09/stanislaw-burzynski-publishes-his-antineoplaston-results-again-its-no-more-convincing-than-last-time/ …Show this thread -
Then there's this trial, which, as much as
#Burzynski and his fans tried to spin it otherwise, basically showed that ANPs don't have detectable activity against liver metastases from colorectal cancer. 22/https://respectfulinsolence.com/2015/03/24/dr-hidaeka-tsuda-demonstrates-that-antineoplastons-dont-work-against-colon-cancer/ …Show this thread -
In the end, what
#Burzynski shows more than anything else, is how ineffective state medical boards and the@US_FDA sometimes are about stopping quackery. 23/https://sciencebasedmedicine.org/stanislaw-burzynski-and-robert-o-young-how-two-quacks-of-a-feather-illustrate-how-poorly-states-regulate-medical-practice/ …Show this thread -
Worse, now that
#RightToTry has passed Congress and will soon be signed into law, Burzynski's practice model has, in essence, been legalized. After all, ANPs have passed phase I testing and Burzynski still has clinical trials for them registered—bogus trials, but trials. 24/Show this thread -
In the end, for four decades,
#Burzynski has victimized the most desperate of patients, selling them a toxic brew that causes severe hypernatremia for vast sums of money while labeling it "nontoxic." Why he is lionized in alt med circles, I'll never understand. 25/25Show this thread
End of conversation
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