Unfortunately, it's also been incredibly effective propaganda. Terminally ill patients have been weaponized against critics by #RightToTry advocates in the the same way that cancer quack Stanislaw #Burzynski weaponized terminally ill cancer patients. 1/https://twitter.com/CoyneoftheRealm/status/973529598377058304 …
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Replying to @gorskon
You've made good points and, admittedly, I have done very little reading into
#RightToTry. Pts with terminal illnesses (no effective approved drugs) should have access to potentially lifesaving drugs, no? I assume that thorough informed consent is required (as it should be).1 reply 0 retweets 0 likes -
Replying to @ThePharmaPhD
It is, but it requires greatly diminishing a patient's right to legal recourse, which to me is coercive.
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Replying to @gorskon
There's no way around that though. Drug makers shouldn't be responsible for AEs related to the optional use of an unfinished drug candidate. Terminally ill pts actively seek out drug trials that may offer hope--unfortunately, many can't get in. RTT would give them options.
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Replying to @ThePharmaPhD
No,
#RightToTry doesn't do anything that expanded access wouldn't do, other than stripping away the protection of the@US_FDA, leaving them completely on their own expense-wise, and preying cynically on a highly vulnerable patient population.1 reply 0 retweets 0 likes -
So RTT skirts the FDA and potentially allows drug companies to inflate the cost of the investigational drug beyond what's allowed in expanded access (direct costs)? Sounds like I have some reading up to do. Thx
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Don't forget the state level #RightToTry laws. They're toothless now, but won't be any more if federal RTT passes. They have language that can be interpreted as allowing insurance companies not to pay for medical care for adverse reactions due to using a RTT drug.
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Thank you. All I have heard to date is the propaganda.
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