One of two things is going on. Either there's a legitimate clinical trial in NYC that doesn't pay for non-US citizens to be enrolled, or the doc is a quack. Call me cynical after having dealt with Burzynski for so long, but lack of transparency makes me wonder about this story.
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Word to journalists doing these human interest stories: You really need to find out and report exactly what the treatment being sought through such
@gofundme campaigns is.Show this thread -
If you don't report the basic information, you can inadvertently end up promoting quacks. Is this happening here? I don't know. It might be a legit clinical trial. It might be a quack. There's no way to know from what is reported.
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In the end, the news stories basically end up being advertisements for the
@gofundme campaign. The reporter and editor likely feel as though they've done a good thing, but without transparency they run the real risk of having just provided an ad to fund a quack.Show this thread
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Is Burzinski the guy who was selling stuff isolated from urine as a cancer miracle cure?
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Makes you wonder, if there is an amplified growth factor / mutation if there is a tyrosine kinase inhibitor being studied, and that she could at least try a drug "single patient access trial." Maybe a CAR-T trial would be more hopeful. Some brain cancers have improved on CAR-T
Thanks. Twitter will use this to make your timeline better. UndoUndo
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I found about a dozen recruiting clinical trials for pontine gliomas in New York by search http://clinicaltrials.gov . Several looked at least "interesting" if not also promising. Columbia, MSK, Cornell, et al. Didn't see a CAR-T study, though. There should be one.
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Sure, but I still stand by my assertion that such stories should report the specific treatment being sought and
@gofundme should not permit such fundraising campaigns unless the specific clinical trial or treatment is included in the campaign description. - Show replies
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