Spectrum News: Panama clinic autism #stemcell study w/o controls or blinding raises big concerns & resonates w/similar work at Duke, which also may require $$$ from some participants https://www.spectrumnews.org/news/experts-question-rationale-for-stem-cell-trial-for-autism/ … #stemcells Thoughts? @ejwillingham @CaulfieldTim @gorskon @aarondlevine
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Oh, that's no defense against profit masquerading as research. See, for example, "marketing trials." (Ref. below.) Big names get involved in those, too. https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-015-1107-1 …
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I agree. Duke has been unclear about how much trial participants are required to pay to be part of their pediatric umbilical cord trials, but some kind of payment seems required at least for some including those from out of the country. It's concerning.
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The crowdfunding campaigns claim that Duke is requiring payment. For example, this one puts it at 20k: https://www.gofundme.com/stem-cells-for-stella …
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