I have a BIG problem with this—and all cancer quackery—and that's informed consent. Quacks always overpromise and underestimate the risks. Also, these parents are the victims of a con and that's how I view these cases, as examples of fraud that actively harms the child.https://twitter.com/ABatemanHouse/status/1040657617109086210 …
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If there is a death that was directly related to the intervention, then this clinic's intervention doesn't meet my defined parameters in which parental choice rules (where there is no evidence to either support or not support an experimental intervention)
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I don't recall, have there been deaths of kids related to Burzynski's "treatment?"
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I'd be inclined to pick up the phone. I'd certainly ask my hospital's child abuse team for their guidance.
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