Although moving, this article in @washingtonpost by @petulad is really misleading, specifically about that Mexican clinic mentioned as a source of hope and at which the parents spent nearly $700,000 to treat their child for DIPG. 1/https://www.washingtonpost.com/local/how-much-would-you-pay-for-one-more-day-one-more-month-with-someone-you-love/2018/09/13/f6ad8c88-b75e-11e8-94eb-3bd52dfe917b_story.html …
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Replying to @gorskon @washingtonpost
Maybe it’s your tweet that is misleading, Dr. I mentioned your concerns a couple times, including this paragraph. Making bigger leaps without deep, scientific reporting is journalistic malpractice. My readers are smart enough to draw their own conclusions.pic.twitter.com/8Dp0xe1RSJ
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Replying to @petulad @washingtonpost
The mention of concern about no science is minimal compared to the totality of the article and is immediately followed by, "But the Knotts were willing to gamble. One more day. One more month with their child. Maybe, one more year, even?" Overall narrative is as I described it.
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Also, in the article, the Mexican treatment is described as "experimental." It is not. To be experimental, it must be under investigation with clinical trials, and, as you pointed out, Drs. Siller and Garcia have published no studies and are not running clinical trials.
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To reiterate, the
@019Clinica treatment is NOT experimental. It IS a treatment consisting of an unproven combination of drugs administered intra-arterially to the brainstem plus an unproven immunotherapy that is being sold to the desperate parents of DIPG patients at high cost.1 reply 0 retweets 0 likes
Despite the @019Clinica treatment for DIPG most definitely not being experimental, the word "experimental" is used in the @washingtonpost article twice, once in a photo caption and once in the text, with the parents' support for #righttotry experimental therapies featured.
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