Although moving, this article in @washingtonpost by @petulad is really misleading, specifically about that Mexican clinic mentioned as a source of hope and at which the parents spent nearly $700,000 to treat their child for DIPG. 1/https://www.washingtonpost.com/local/how-much-would-you-pay-for-one-more-day-one-more-month-with-someone-you-love/2018/09/13/f6ad8c88-b75e-11e8-94eb-3bd52dfe917b_story.html …
To reiterate, the @019Clinica treatment is NOT experimental. It IS a treatment consisting of an unproven combination of drugs administered intra-arterially to the brainstem plus an unproven immunotherapy that is being sold to the desperate parents of DIPG patients at high cost.
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Despite the
@019Clinica treatment for DIPG most definitely not being experimental, the word "experimental" is used in the@washingtonpost article twice, once in a photo caption and once in the text, with the parents' support for#righttotry experimental therapies featured.Thanks. Twitter will use this to make your timeline better. UndoUndo
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