Although moving, this article in @washingtonpost by @petulad is really misleading, specifically about that Mexican clinic mentioned as a source of hope and at which the parents spent nearly $700,000 to treat their child for DIPG. 1/https://www.washingtonpost.com/local/how-much-would-you-pay-for-one-more-day-one-more-month-with-someone-you-love/2018/09/13/f6ad8c88-b75e-11e8-94eb-3bd52dfe917b_story.html …
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Also, in the article, the Mexican treatment is described as "experimental." It is not. To be experimental, it must be under investigation with clinical trials, and, as you pointed out, Drs. Siller and Garcia have published no studies and are not running clinical trials.
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To reiterate, the
@019Clinica treatment is NOT experimental. It IS a treatment consisting of an unproven combination of drugs administered intra-arterially to the brainstem plus an unproven immunotherapy that is being sold to the desperate parents of DIPG patients at high cost. - Show replies
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