Although moving, this article in @washingtonpost by @petulad is really misleading, specifically about that Mexican clinic mentioned as a source of hope and at which the parents spent nearly $700,000 to treat their child for DIPG. 1/https://www.washingtonpost.com/local/how-much-would-you-pay-for-one-more-day-one-more-month-with-someone-you-love/2018/09/13/f6ad8c88-b75e-11e8-94eb-3bd52dfe917b_story.html …
-
Show this thread
-
The clinic, of course, is almost certainly
@019Clinica, where two quacks have been taking advantage of desperate families of children with DIPG with an unproven treatment. 2/https://respectfulinsolence.com/2018/07/03/clinica-0-19-not-making-dipg-history-in-monterrey-part-1/ …1 reply 4 retweets 7 likesShow this thread -
This clinic charges hundreds of thousands of dollars and Drs. Alberto Siller and Alberto Garcia refuse to publish even their survival statistics because they're "too busy taking care of patients." 3/
1 reply 2 retweets 6 likesShow this thread -
The
@019Clinica protocol, such as it is, is a secret "make it up as you go along" combination of intraarterial chemotherapy and an unspecified immunotherapy. 4/https://respectfulinsolence.com/2018/07/05/clinica-0-19-not-making-dipg-history-in-monterrey-part-2-of-3/ …1 reply 2 retweets 6 likesShow this thread -
The drugs include a cocktail of up to 18 drugs, many at very low doses. There is little or no biological plausibility. 5/
1 reply 2 retweets 6 likesShow this thread -
Worse, there is harm. Children have been harmed, and parents have been stranded in Mexico, unable to leave because a medical flight is too expensive but racking up $2,000 a day. The tales are horrifying. 6/https://respectfulinsolence.com/2018/07/17/clinica-0-19-making-dipg-history-part-3/ …
1 reply 2 retweets 9 likesShow this thread -
But do Drs. Siller and Garcia have any evidence? Well, yes they do, but it's remarkable for how unimpressive it is. There is nothing in their questionable survival statistics better than conventional therapy that can't be explained by selection bias. 7/https://respectfulinsolence.com/2018/09/11/idoi-not-making-dipg-history-in-monterrey-part-4/ …
1 reply 2 retweets 8 likesShow this thread -
So
@washingtonpost and@petulad's portraying@019Clinica with the question, "How much would you pay for one more day, one more month with someone you love?" without acknowledging the lack of evidence for its treatments and financial toxicity to the families is irresponsible. 8/82 replies 4 retweets 21 likesShow this thread
Oh, one last thing. Never, ever refer to what @019Clinica is doing as "experimental therapy." It's not. Drs. Siller and Garcia are not testing a therapy in clinical trials. They're selling it without evidence to the desperate parents of dying children. 8a/8
-
-
Replying to @gorskon @019Clinica
Is "How Low will Mexico-Based Quack Clinic Go To Take Advantage of Desperate Parents of Dying Children?" a more accurate headline?
0 replies 0 retweets 0 likesThanks. Twitter will use this to make your timeline better. UndoUndo
-
Loading seems to be taking a while.
Twitter may be over capacity or experiencing a momentary hiccup. Try again or visit Twitter Status for more information.