Although moving, this article in @washingtonpost by @petulad is really misleading, specifically about that Mexican clinic mentioned as a source of hope and at which the parents spent nearly $700,000 to treat their child for DIPG. 1/https://www.washingtonpost.com/local/how-much-would-you-pay-for-one-more-day-one-more-month-with-someone-you-love/2018/09/13/f6ad8c88-b75e-11e8-94eb-3bd52dfe917b_story.html …
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Oh, one last thing. Never, ever refer to what
@019Clinica is doing as "experimental therapy." It's not. Drs. Siller and Garcia are not testing a therapy in clinical trials. They're selling it without evidence to the desperate parents of dying children. 8a/8Show this threadThanks. Twitter will use this to make your timeline better. UndoUndo
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Think how much better that money could have been spent keeping the child comfortable at home, not stressed out in a foreign country ... and how much better the crowd-funding could have been used on stuff like real research.
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