So the criticism got to BrainStorm, did it? Good. Now, a brief thread on #RightToTry.https://twitter.com/DonnaYoungDC/status/1011627015567478785 …
Then, such a quack clinic could rigorously comply with #RightToTry's provisions for recovering direct costs only but STILL profit from "case management" fees, just like #Burzynski. Don't think they haven't thought of it already. 9/
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The bottom line is, I'm glad BrainStem backed down and is trying to be more ethical, even though I really do think their product is not dissimilar to the stem cell treatments sold by dubious stem cell clinics, with little evidence to support its efficacy. 10/
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However, let's not fool ourselves into thinking that there isn't significant profit potential in
#RightToTry. It's just not going to be run-of-the-mill quacks, who don't have drugs that have passed phase I and are in clinical trials, who will do it. 11/Show this thread -
Let's also not forget @SGottliebFDA is not likely to be too enthusiastic about vigorous
@US_FDA enforcement of the direct costs provision of#RightToTry, given the beatdown given him by@SenRonJohnson for having had the temerity to suggest the FDA can still protect patients.12/12Show this thread
End of conversation
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