Tweetovi
- Tweetovi, trenutna stranica.
- Tweetovi i odgovori
- Medijski sadržaj
Blokirali ste korisnika/cu @GlobalGenes
Jeste li sigurni da želite vidjeti te tweetove? Time nećete deblokirati korisnika/cu @GlobalGenes
-
Prikvačeni tweet
With a new year comes new opportunities. Our CEO, Kimberly Haugstad, is excited to kick-off a new decade in
#raredisease.https://globalgenes.org/2020/01/07/happy-new-year-from-kimberly-haugstad/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We've enjoyed connecting and educating this week during
#DataDIY. Thanks to all in-person and livestream attendees!#CareAboutRare#raredisease https://dev-global-genes.pantheonsite.io/data-diy/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Collaboration is key for the
#raredisease community. Kimberly Haugstad shares our approach in this podcast.https://michellemarketingstrategies.com/kimberly-haugstad-power-of-collaboration/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you to everyone who has followed along with the
#DataDIY series. You can find resources for all of the workshops here:https://globalgenes.org/data-diy/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Global Genes proslijedio/la je Tweet
Regarding including minorities at much higher rates in
#clinicaltrials for#rarediseases,@ichristianr_ of@globalgenes says “Good science requires it. Good treatments require it.”#DataDIY

Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
“Health is not a waffle. You can’t pour syrup into one square and expect it to stay there. Health research is more like spaghetti. If you pour sauce on one noodle, it’s likely to get everywhere” -Robyn Correll Carlyle, MPH, CHWIpic.twitter.com/DkBmdM5cbc
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Community health workers are a really important bridge to underserved populations. They can be your eyes and ears so that you know a community’s real concerns and needs.
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
“We have to figure out how to establish the collaborations we need to provide health equity” -Khristal K. Davis, JD, Founder, Texas Rare Alliance
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
"We cannot treat what we do not diagnose." - Khrystal K. Davis, JD, Founder, Texas Rare Alliance
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Have a question for this panel? Ask now. https://datadiy4.cnf.io/sessions/jwpp/#!/dashboard …
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Quick Poll: What are some barriers that keep you from reaching more patients? Answer here: https://datadiy4.cnf.io/sessions/jwpp/#!/polls/xg2y …
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Now for a panel on expanding your engagement to underserved populations with Dr. Horn (LHC BioSolutions), Linda Wade and Jordan Shumway (
@SickleCellMTF), Khrystal Davis (Texas Rare Alliance), and Robyn Carlyle (@TXCHW1).#DataDIY#RareDiseasepic.twitter.com/RibLMicIDQ
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Have questions for our panel? Ask now: https://datadiy4.cnf.io/sessions/t4y7/#!/dashboard …
#DataDIY#RareDiseasepic.twitter.com/6ZlThcQV3A
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
You have to know what the human looks like to reproduce it in a mouse and natural history studies can help with that.
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Remember to define your research goals when embarking on a natural history study.
#DataDIY#RareDiseasepic.twitter.com/fJKALBqkmw
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Quick Poll: Are there clinical guidelines for the disease that your organization focuses on? Answer here https://datadiy4.cnf.io/sessions/t4y7/#!/polls/atcq …
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Establishing a primary database with a positive effect of having all protocols listed on http://clincialtrials.gov , allowing researchers and patient families to get in contact with appropriate resources.
#DataDIY#RareDiseasepic.twitter.com/shRx1NRmos
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Our next panel on clinical guidelines for data features Paige Nues of
@rettsyndrome and Dr. Suter and Dr. Glaze of@bcmhouston.#DataDIY#RareDiseasepic.twitter.com/4x22ZvLtUk
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Q&A time with Dr. Pullen and Maria. Ask here: https://datadiy4.cnf.io/sessions/fnr6/#!/dashboard …
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The
@US_FDA is willing to hear the patient voice so don't be afraid to ask for help.#DataDIY#RareDiseasepic.twitter.com/jDr0CaTVva
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hot Tip: You need IRB approval or waiver or you won’t be able to publish your data.
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.