George Rook

I’m writing a draft of a Living Plan for a project here in Shropshire. A plan for living with dementia. And I keep feeling waves of sadness... It’s a profound feeling, doing this. Like the end is approaching... And I’ll never more going aroving. Not true, but a feeling.

#NDAAConference We really need to make sure that the 5 rights statements are publicised everywhere, and that people affected use them to demand what they are entitled ot, and what they have a right to expect. Must keep challenging on this.

#NDAAConference Sarah Butchard: need to look at the practical realities and application of Rights in day to day living with dementia

#NDAAConference Sarah Butchard: people may talk a out rights, but not enforce them, or reflect them in practice.

#NDAAConference Janis Cottee saying that we need to make sure that all plwds and carers know about and voice and use the dementia rights statements. BAME GLBT, et al

#NDAAConference @nigel8812922 This is a good test: is this a service professoinals want to deliver, or a service WE want? Co-production...

#NDAAConference Sarah Butchard: there is best practice out there, but often it is not happening. The statements need a legal framework behind them to enable people affected to use them.

#NDAAConference Catherine Diamond: the statements are a really good summary of the rights that everyone has. Excellent starting point for anyone who feels their rights have been compromised.

#NDAAConference @nigel8812922 Saying that the rights statements provide a lens through which all professionals can review what they do, and how.

#NDAAConference @JeremyHughesAlz What are you going to do drive Dept of Helath and Social Care to meet their commitments? What will you do to use co-production? What will you do in your own organisation?

#NDAAConference Keith Oliver Some professionals see co-production as losing control.

#NDAAConference keith Oliver... ‘United Against Dementia’ is a great slogan or banner for co-production. The dementia rights statements also provide a rationale for co-production.

#NDAAConference @JeremyHughesAlz We must hold the govt to account to improve support and diagnosis for people living with dementia

#NDAAConference @JeremyHughesAlz If one third of people with cancer died without diagnosis there would be an outcry. Not for dementia?

#NDAAConference @JeremyHughesAlz Funding for research into dementia has doubled in ten years. But very small proportion of diagnosed plwds are imvolved in research and clinical trials.