talking with someone who has a brain injury is very difficult! everything they're saying makes perfect sense to them and they can't figure out why everyone is pretending not to understand them
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I spent 30 minutes today interrogating my dad about what he wanted, as he repeatedly demanded his "cancer pills". turns out he needed to go to the bathroom
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the only strategy I've found so far is to keep trying to get him to rephrase ("what are the pills meant to help or prevent?" "when do you usually take them?") in hopes that I can knock him out of a particular rut
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bowser Retweeted bowser
anyway looking back at old posts it's staggering to see how trivial some of the stuff I worried about washttps://twitter.com/browserdotsys/status/1195926623964606464 …
bowser added,
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Replying to @browserdotsys
For the rare disease community I'm part of, every patient conference has a separate track for caregivers because navigation is just... ...there be dragons everywhere.
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When I got sick, in the back of my mind I wondered how much harder it was for my parents than me, for a variety of reasons. The last year I've been on the opposite side for someone I love and damn — it's not something you can comprehend without experience.
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