💥 (wannabe) Ƀreaker of (the Bad) Loops 💫 Retweeted Matt Might
I never fully appreciated this until now. I was an undergrad when diagnosed with #chordoma. I used @umd resources to read every paper on it. It helped me make informed choices about doctors. @ChordomaFDN fills that role now...
...but we’re only one disease community.https://twitter.com/mattmight/status/1029723368541638656 …
💥 (wannabe) Ƀreaker of (the Bad) Loops 💫 added,
Matt Might @mattmight
Thread/Rant.
This is ridiculous.
Let's be clear: @ElsevierConnect prohibits access to science for rare disease families.
Do you think rare disease families, in addition to dealing with children with rare diseases have time to do this?
No. We're drowning, 24-7. https://twitter.com/mrgunn/status/1028809095502024705 …
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5:05 PM - 1 Sep 2018
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