GA4GH

@GA4GH

Global Alliance for Genomics & Health. Working together for responsible, voluntary & secure sharing of genomic & clinical data for human health.

genomicsandhealth.org
Iscritto a marzo 2014
14 foto e video Foto e video

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  1. ha ritwittato
    2 ore fa

    In sunny Bay Area California for a workshop between and on reproducible cloud workflows (starts Monday)

    2 risposte 2 Retweet 6 Mi piace
  2. 27 lug

    Luis Gallardo of Mexico's 20 de Noviembre Nat'l Med Ctr: closer ties btwn docs & rsrchrs essential to

  3. ha ritwittato
    26 lug

    Our Nadia discusses org's supporting in , & our work with ->

    7 Retweet 5 Mi piace
  4. 26 lug

    "Pocket " soon to generate trove of data-we must ensure data, tech, tools serve public good

    11 Retweet 7 Mi piace
  5. ha ritwittato
    25 lug

    MME has updated our tiered consent policy see commentary in

    5 Retweet 6 Mi piace
  6. ha ritwittato
    25 lug

    . presents the project as part of ELIXIR Human Data Use case:

    10 Retweet 4 Mi piace
  7. 25 lug

    Register for 5th Plenary soon -- discounted hotel rooms are going fast!

    4 Retweet 2 Mi piace
  8. ha ritwittato
    22 lug

    Tricky question to answer but how many whole human genome sequences do we now think exist? Illumina estimates 228k in 2014.

    6 risposte 7 Retweet 11 Mi piace
  9. ha ritwittato
    23 lug
    In risposta a

    A: good approach from - collaborate on infrastructure, compete on applications

    1 Retweet 3 Mi piace
  10. ha ritwittato
    20 lug

    The results? Telephone disclosure occurred a week sooner & took 30% less time with no added anxiety/depression, see

    Out today from , reports first randomized trial of telephone genetic disclosure of frightening common risk variant!
    33 Retweet 37 Mi piace
  11. ha ritwittato
    20 lug

    This, this, a hundred times this! We’re not protecting the data, we’re protecting the people who’ve been measured by data.

    Why are all these bills called Data Protection and not Person Protection with respect to Data?
    2 risposte 33 Retweet 56 Mi piace
  12. 19 lug

    We're pleased to share that Harold Varmus and will deliver a joint keynote at in October.

    10 Retweet 16 Mi piace
  13. ha ritwittato
    11 lug
    In risposta a

    A4b: Cit sci has real potential to span borders; advocate for using human rights declaration to guide solutions desc by

    3 Retweet 1 Mi piace
  14. ha ritwittato
    10 lug

    Recommended article blog: A very human story about rare diseases, gene databases and interconnected API-s

    6 Retweet 4 Mi piace
  15. 7 lug

    Become a member to receive reduced pricing on 5th Plenary registration

    2 Retweet 7 Mi piace
  16. 6 lug

    . calls on public to accept new social contract: we all benefit when our genomic data are studied

    8 Retweet 7 Mi piace
  17. ha ritwittato
    6 lug
    In risposta a , e

    we must bring together the variant "intelligence" held in NHS genetics labs to maximise clinical utility

    1 risposta 2 Retweet 1 Mi piace
  18. 5 lug

    New Milestone! GA4GH now has over 1,000 individual members who support our efforts to enable responsible genomic data sharing.

    4 Retweet 8 Mi piace
  19. ha ritwittato
    4 lug
    In risposta a

    To set global standards - helping clinical practice and research- we participate - and lead - - global genomics standards

    2 Retweet 1 Mi piace
  20. ha ritwittato
    1 lug

    The plenary meeting - global standards for clinical genomics and genomic federation for research. A great line up

    Have you registered for 5th plenary meeting? You won't be disappointed!
    9 Retweet 9 Mi piace

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