FOXG1 Research

@Foxg1Research

FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders. We are pioneering research to find a cure.

Dołączył wrzesień 2017

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  1. podał/a dalej
    24 lis

    "We envision a future where patients and advocacy organizations are empowered to jumpstart their own research programs. Together with , , and ,

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  2. 1 gru
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  3. podał/a dalej
    23 lis
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  4. 24 lis

    . is pioneering research and advocacy to find treatments, cures + therapies for individuals diagnosed with FOXG1 syndrome

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  5. 23 lis

    A special shout out to for your dedication to this brilliant project and to the advancement of rare research!

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  6. 23 lis

    We are so thrilled to announce a $500K grant from the incredible to Pioneer a Machine Learning Approach to Accelerate Rare Disease Research.

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  7. 10 lis

    We are honored to announce a partnership with Creyon Bio to explore and hopefully advance new oligonucleotide based therapeutics for the treatment of FOXG1 syndrome. Please read our November Research Update Here:

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  8. 29 paź
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  9. 22 paź

    We’re thrilled to announce that Taysha Gene Therapies is developing gene replacement therapy (TSHA-117) for syndrome. Please read the letter from here:

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  10. 13 paź

    Please take 2 minutes to review us for the Top-Rated Awards! Thanks so much!

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  11. 13 paź

    we’re holding the next FOXG1 Parents Connect Zoom on October 29th and will have a special Research Update to share! If you’re a FOXG1 parent or caregiver, please join us!

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  12. 22 wrz
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  13. 19 wrz

    Everything we do is inspired by the trail that RBG blazed. We’re heartbroken to live in a world without you, but we will carry your torch in every way possible.

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  14. 8 wrz

    We’re thrilled to welcome Dr. Scott Dindot from Texas A&M to our Scientific Advisory Board! Dr. Dindot designed an ASO candidate for Angelman Syndrome currently in clinical trials and will be guiding our ASO strategy.

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  15. 2 wrz
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  16. 23 sie

    Check out these adorable kid’s masks that we’re selling to fund the scientists that are working towards a cure! Stock up! Stay safe and help us give so many kids the life they deserve!

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  17. 20 sie

    FOXG1 symposium advances science, gives hope to families battling rare disease

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  19. 18 sie

    World leading, disease beating scientists talk about potential new therapies LISTEN IN 11AM ET/8AM PT Antonella Mallamaci Dr. Soo-Kyung Lee Sylvain Lengacher Yael Weiss

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  20. 18 sie

    Over 700 new drugs since 1983 thanks to the Orphan Drug Act. Working towards a new drug for . Thank you Dr. Lewis Fermaglich

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