FNDFrieNDS

@fndfriends

Living life the FND way.

Southwest , England
Joined June 2016

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  1. 8 Oct 2019

    This week is mental health awareness week. Remember to take care of yourself and put your needs first. You are important! Dealing with FND comes hand in hand with some form of depression and grief, these symptoms are just as important to see a doctor about as your other symptoms.

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  2. 4 Sep 2019

    Self care is so so important, especially when you are dealing with a debilitating illness. Remember to take some time out of every day to answer to your own needs! You and your body need it!🌻

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  3. 21 Aug 2019

    Functional Neurological Disorder has such a physical impact on your life, and not only that it brings on mental illnesses as well because people don’t understand it. We need to fight to end the stigma around FND!💪🏻

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  4. 17 Aug 2019

    We had a very successful day in Plymouth today! We sold out of everything and realised lots of awareness for the debilitating condition we all have :)

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  5. 12 Aug 2019

    Who here has heard the words “oh, but you don’t look sick” ? It’s time we fight against the stigma of hidden illnesses. What we feel on the inside is so different to the put together tidiness on the outside!

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  6. 10 Aug 2019

    FND is tough, but so are you!💕

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  7. 8 Aug 2019

    For more information about any of our meet ups and support groups, or any of our charity events don’t hesitate to contact us or joint our ‘FND FrieNDs closed support group’ on Facebook! #fnd#fndaware#fndfriends#functionalneurologicaldisorder#neurology#chronicillness#spoonie

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  8. 27 Jul 2019

    Remember it’s okay to have a bad day! They are equally important as the good days, and one day the good days will become more frequent!

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  9. 25 Jul 2019

    Today we raised around £150 for and spread a lot of awareness for this cruel condition. Speaking to social workers and physios and OTs really made me realise how few people know about this condition!💕

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  10. 23 Jul 2019

    Let us know if your coming!!!

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  11. 22 Jul 2019

    Here is some of the many hundreds of symptoms that people with FND may experience, FND is so much more then what people think. FND is a life altering and debilitating chronic illness. People with FND are strong! #westandwithFND#FNDstrong#fnd#functionalneurologicaldisorder

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  12. 21 Jul 2019

    Well done and thank you to our for the fantastic musical theatre concert last night to raise money and awareness for FND. You where phenomenal. Look out at our page for any future FND friends events!

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  13. 19 Jul 2019

    Great meet up in Plymouth today! Nice to see some new faces. Anyone around the Plymouth area feel free to message us if you want to come to our next meet up💕

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  14. 9 Jul 2019

    Today I came across a very interesting image showing that parts of the brain that have reduced functions and/or inflammations in FND patients and more specifically functional movement disorders. 👇🏻

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  15. Retweeted
    9 Jul 2019

    Only 4 days to go until our sponsored walk at Little Stoke Bristol, 14th July from 12 with the proceeds going to help people with FND. Please sponsor us if you can and come and support the walkers. Tea/coffee and cakes on sale on the day. .

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  16. 4 Jul 2019

    Wishing everyone a good tomorrow. Remember when you are battling every day with a chronic illness, waking up alone is something to be proud of💕

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  17. 3 Jul 2019
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  18. 1 Jul 2019

    Seeing FND on TV always uplifts me, it shows that amongst all the darkness there is hope and promise that in the not too distant future there will be more awareness for these conditions that seem to fall through the cracks. Here is one from FND week.💕

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  19. 25 Jun 2019

    There are very few that manage to get cured Freya. I have come across only 2 so far&1 of those had symptoms for only 3-4 months. We need more info on the deaths too as the report is very vague on the actual causes of death. Well done on opening up, awareness is vital for FND.

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  20. 25 Jun 2019

    For any of you that are okay with a longer read, here is an blog post that I wrote about ‘what is FND’ from a patients point of view and what I have been told by many different professionals.👇🏻

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