Fibromyalgia Action UK

@fmauk

FMA UK are a UK charity raising awareness and supporting people with fibromyalgia. Follow us today and help us increase awareness of fibromyalgia! 👋🏼

United Kingdom
fmauk.org
Joined November 2008
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  1. 15 hours ago

    Sounds like a very interesting debate that would interest people with fibromyalgia and others with "chronic primary pain." Des

    28 April, 11:25-12:20 Topical Plenary 3: The Big Plenary Debate- NICE or Nasty? Speakers: Dr Paul Chrisp Victoria Abbott-Fleming Moderator: Pankaj Madan
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  2. Retweeted
    Apr 23

    Thought of the day Don’t overdo it on the good days or beat yourself up on the bad ones. Chronic illness is not a race; it is natural to go off course. . . . …

    9 retweets 20 likes
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  3. Apr 23

    It was great to take part in the panel last night and see the people involved. Keep up the good work Lorna :) Anyone that has not seen it you can find info here: Des

    I'm honoured to have been invited to join the Q&A panel for from 7pm this evening. I'll do my best to answer any questions about and the impact of this often invisible disease.
    3 retweets 6 likes
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  4. Apr 22

    Loved your interview with and looking forward to reading your book. Small steps make a difference :) Still trying to work out what character my inner pain voice would be :) Des

    This ⬇️!! -- whether living with pain, treating it, dealing with the stress of this year, or navigating your Thursday. Small steps forward, upwards & onwards, huzzah!
    1 reply 2 retweets 15 likes
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  5. Apr 22

    Hannah from has been talking about their new album but also about her fibromyalgia. Being 31, and in a hectic music career, it highlights how fibro can impact anyone. 👉🏽

    1 reply 11 retweets 19 likes
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  6. Retweeted
    Apr 20

    Benji lives with and joint hypermobility syndrome. They share their experience of everyday life with their conditions and tell us why a good support system is important, especially in a society where queer voices are  often overlooked:

    1 reply 14 retweets 33 likes
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  7. Apr 20

    It is more than just pain. .

    1 reply 43 retweets 58 likes
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  8. Apr 20

    Head to our Facebook page to read about why Emma Barnwell will be fundraising for us by completing a wing walk. 👉🏽

    3 retweets 8 likes
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  9. Apr 19

    An awareness article on fibromyalgia which highlights how the condition can impact upon life. 👇

    8 replies 29 retweets 58 likes
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  10. Apr 19

    Some information on fibromyalgia and the work that they do to help with research on the condition from our friends at . 👇🏽

    What causes fibromyalgia? Can we develop new ways to diagnose fibromyalgia?👩‍🔬 These are just some of the questions our amazing researchers are working to find answers to. Read more: 👉
    12 retweets 19 likes
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  11. Apr 18

    welcome to twitter :) and luck with your stall. Des

    Hello world! We’ve just joined Twitter! CBME is a support group based in UK, for people with , , , or , including triggered by . Here is a thread about what we do: /1
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    1 reply 2 retweets 6 likes
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  12. Retweeted
    Apr 17
    Replying to and

    It was an absolute pleasure to meet you Des, looking forward to more collaboration and more fibro groups coming on, if you'd like to come on and tell us about your work please DM or email Sharonturnbull@morethanfibro.org

    2 retweets 2 likes
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  13. Apr 16

    FMA UK chair, Des Quinn, had some comments featured in an article on chronic pain which can be found below. 👉

    7 retweets 13 likes
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  14. Retweeted
    Apr 15

    The petition it’s still under review (for a second time) but can be found here

    Steph, who has written articles for ourselves before, has written an article on her view of the NICE guideline changes. 👇
    1 reply 4 retweets 3 likes
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  15. Apr 15

    Birthday coming up soon? Facebook fundraisers are quick and easy to create and many people choose to set them up for birthdays. Click on the link below if you're interested in starting one! 👉

    2 retweets 5 likes
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  16. Retweeted
    Apr 14

    How old were you when you were diagnosed with Fibro?

    76 replies 8 retweets 13 likes
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  17. Apr 14

    Please if you can, ignore the fact that the booklets are upside down... Another coffee for me I think. 🤦🏽‍♂️ - Reece

    2 retweets 14 likes
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  18. Apr 14

    🤔 Question marks over employment with fibromyalgia? Our employee's and employer's booklet can be viewed online along with our other information booklets at

    1 reply 9 retweets 19 likes
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  19. Apr 14

    RESEARCH | A researcher from the University of Manchester is looking for people to help out in a study to help gain a better understanding of why people with fibromyalgia experience sensitivity to pain. Click below for more info and how to take part. 👉

    3 replies 14 retweets 21 likes
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  20. Retweeted
    Apr 13
    Replying to

    I’m so proud of you and happy for you!! Excellent achievement and such a great charity as well!!

    1 reply 3 retweets 5 likes
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