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Prikvačeni tweet
Breaking news! The programme for our upcoming
#DrugRepurposing for#RareDiseases Conference is now live. Head over to our registration page to find out who's speaking and grab your tickets
https://www.eventbrite.co.uk/e/drug-repurposing-for-rare-diseases-2020-conference-tickets-74705370775 …pic.twitter.com/VCuo3MfST2
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Did you know we have just uploaded our 'Developing our medical guidelines' guide our online learning portal? In fact there are over 25 courses on our portal to help you to develop your patient group, so why not go check it out http://ow.ly/UgGn50ye1tu Let us know what you think!pic.twitter.com/HTzUV76f6i
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Great news that
@CuresWReach are offering updated requests for proposals for their Cure Accelerator. This includes clinical repurposing research opportunities for rare blood cancers and Retinitis Pigmentosa. Check it out here, https://www.cureswithinreach.org/research/funding-opportunities-rfps …#RareDisease#RepurposingHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Rick will be talking about his favourite subject, drug repurposing, at 'the unusual suspects' so be sure to get your tickets and get involved!
@M4RareDiseases#RareDisease#DareToThinkRarehttps://twitter.com/M4RareDiseases/status/1224996086252572672 …
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Such a great place to keep up with all the exciting events in the
#RareDisease community!https://twitter.com/camraredisease/status/1224699307263176709 …
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Alan, a member of our brilliant patient engagment committee in the
@PharmaTimes this week, ahead of#RareDiseaseDayhttps://twitter.com/Ataxia_and_Me/status/1224664043203547137 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Sally, another of our brilliant patient committee has also been in the newspapers this week! "I want to be more open. So, that we can raise awareness, and above all, acceptance."
https://www.messengernewspapers.co.uk/news/18204854.sally-hattons-experiences-illustrated-art-featured-number-17-exhibition/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Findacure proslijedio/la je Tweet
We’re excited to announce 30 grantees to our
#RareAsOne Network. These patient-led organizations are partnering with clinicians and researchers to accelerate research for their#RareDiseasehttps://czi.co/RareAsOneNetwork …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Findacure proslijedio/la je Tweet
Delighted to announce Dr Anthony Hall has joined us as Chief Medical Officer (CMO)
The @findacure_fdn co-founder will be responsible for progressing our#raredisease treatments through the clinic - starting with#fragileX clinical trials. Read more: https://healx.io/news/healx-appoints-dr-anthony-hall-as-chief-medical-officer/ …pic.twitter.com/V2hxLH1eyu
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How can we engage
#YoungPeople with#RareDiseases in making informed decisions about their care? Our#PatientEngagement Committee member@TheWoollard has been tackling the question in the Autumn edition of Pharmafile. Please do give it a read!
http://ow.ly/SKB150y6LkH Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Findacure proslijedio/la je Tweet
The UK leaves the European Union tonight, but we will still be a part of European science.
Read the joint letter from our director Paul Nurse, @embl director general Edith Heard and@sangerinstitute director Mike Stratton.https://www.crick.ac.uk/news/2020-01-31_researchers-will-continue-to-work-together-after-brexit …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Its
#NationalStorytellingWeek
Remember, stories don't just exist for characters in made up lands. Everyone has a story and that story matters- you just have to tell it in the right way. So if you do anything this week- get working on that elevator pitch!https://twitter.com/Caf/status/1223523882809905152 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Findacure proslijedio/la je Tweet
An event not to be missed if you can get to Cambridge. Join
@camraredisease for
and
on February 29th, as part of #RareDiseaseDay@rarediseasedayhttps://twitter.com/camraredisease/status/1223907081834680323 …
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There's only a month to go until rare disease day 2020 and this weeks blog explores some events taking place worldwide, as well as sharing some stories from our inspirational patient engagement committee
https://www.findacure.org.uk/2020/01/31/rare-disease-day-2020-worldwide-strong-and-proud/ …pic.twitter.com/q2DjqZD0hw
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Is your patient group wanting to do any of these things? If so, why not check out our 2020 patient group mentoring programme, which applications have just opened for! https://www.findacure.org.uk/peer-mentoring/mentoring-programme-2020/ …pic.twitter.com/Uj3ZAEDVFd
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Findacure proslijedio/la je Tweet
Could you provide work experience for local students?
Year 10 students from Cambridge Academy for Science and Technology are currently looking for placements for 24-28 February.
http://ow.ly/4kMQ50y96ek @form_future#membernews#cambridgenewspic.twitter.com/8pST7YU36Y
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Happy Friday from and last day of January from Findacure HQ! Have a great weekend
#FridayFeeling

pic.twitter.com/a1D39CKiwrHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Still thinking about leadership after our workshop last week? Why not keep learning by taking a look at this handy and free online course?
#LeadershipDevelopmenthttps://twitter.com/FutureLearn/status/1177559787862724610 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
For all our followers up in the north, check out this event on
#RareDiseaseDay at Newcastle's Discovery Museum!https://twitter.com/KasiaPirog1/status/1219981340466171907 …
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Mary Rose and Philippa are excited to be helping with Pint of science this May, bringing rare disease knowledge and awareness to the pubs and public of Cambridge!https://twitter.com/pintofscienceIE/status/1221879460426895363 …
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Penultimate speaker announcement! Dr Rick Thompson from








