Findacure

@findacure_fdn

Findacure is a UK charity that is building the rare disease community in order to drive research and develop treatments. Tweets do not mean endorsements.

Vrijeme pridruživanja: ožujak 2012.

Tweetovi

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  1. Prikvačeni tweet
    20. sij

    Breaking news! The programme for our upcoming for Conference is now live. Head over to our registration page to find out who's speaking and grab your tickets 🎫

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  2. prije 16 sati

    Did you know we have just uploaded our 'Developing our medical guidelines' guide our online learning portal? In fact there are over 25 courses on our portal to help you to develop your patient group, so why not go check it out Let us know what you think!

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  3. prije 16 sati

    Great news that are offering updated requests for proposals for their Cure Accelerator. This includes clinical repurposing research opportunities for rare blood cancers and Retinitis Pigmentosa. Check it out here,

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  4. prije 20 sati

    Rick will be talking about his favourite subject, drug repurposing, at 'the unusual suspects' so be sure to get your tickets and get involved!

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  5. prije 20 sati

    Such a great place to keep up with all the exciting events in the community!

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  6. 4. velj

    Alan, a member of our brilliant patient engagment committee in the this week, ahead of

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  7. 4. velj

    Sally, another of our brilliant patient committee has also been in the newspapers this week! "I want to be more open. So, that we can raise awareness, and above all, acceptance." 🦓

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  8. proslijedio/la je Tweet
    3. velj

    We’re excited to announce 30 grantees to our Network. These patient-led organizations are partnering with clinicians and researchers to accelerate research for their

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  9. proslijedio/la je Tweet
    4. velj

    Delighted to announce Dr Anthony Hall has joined us as Chief Medical Officer (CMO) 👏🏼 The co-founder will be responsible for progressing our treatments through the clinic - starting with clinical trials. Read more:

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  10. 3. velj

    How can we engage with in making informed decisions about their care? Our Committee member has been tackling the question in the Autumn edition of Pharmafile. Please do give it a read! 📖

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  11. proslijedio/la je Tweet
    31. sij

    🇪🇺 The UK leaves the European Union tonight, but we will still be a part of European science. 📝 Read the joint letter from our director Paul Nurse, director general Edith Heard and director Mike Stratton.

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  12. 3. velj

    Its 📖✏️ Remember, stories don't just exist for characters in made up lands. Everyone has a story and that story matters- you just have to tell it in the right way. So if you do anything this week- get working on that elevator pitch!

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  13. proslijedio/la je Tweet
    2. velj

    An event not to be missed if you can get to Cambridge. Join for ☕️ and 🍰 on February 29th, as part of

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  14. 31. sij

    There's only a month to go until rare disease day 2020 and this weeks blog explores some events taking place worldwide, as well as sharing some stories from our inspirational patient engagement committee 🙌

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  15. 31. sij
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  16. 31. sij

    Is your patient group wanting to do any of these things? If so, why not check out our 2020 patient group mentoring programme, which applications have just opened for!

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  17. proslijedio/la je Tweet
    31. sij

    Could you provide work experience for local students? 📚 Year 10 students from Cambridge Academy for Science and Technology are currently looking for placements for 24-28 February. 👉

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  18. 31. sij

    Happy Friday from and last day of January from Findacure HQ! Have a great weekend 💃💃💃

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  19. 31. sij

    Still thinking about leadership after our workshop last week? Why not keep learning by taking a look at this handy and free online course?

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  20. 30. sij

    For all our followers up in the north, check out this event on at Newcastle's Discovery Museum!

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  21. 30. sij

    Mary Rose and Philippa are excited to be helping with Pint of science this May, bringing rare disease knowledge and awareness to the pubs and public of Cambridge!

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