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Prikvačeni tweet
"
#RareDiseases and#EuropeanReferenceNetworks" event at Pisa on 22nd February organised by@ern_reconnet for#RareDiseaseDay: italian#ERN representatives will convene to discuss on good practices in rare diseases#ShareCareCure#PatientsInvolvement@EU_Health@EU_Commissionpic.twitter.com/BPPENVoAu0Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#rare is#many
worldwide
#rare is#strong
every day
#rare is#proud
everywhere
#RareDiseaseDay
2020
#RareDiseases
https://twitter.com/rarediseaseday/status/1222536213942427651 …
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ERN ReCONNET proslijedio/la je Tweet
#ejprd#RDR#challenges#call:#registration to the#networking#event has been extended to 6 Feb,#SignUp
https://www.ejprarediseases.org/index.php/funding-schemes/rare-diseases-challenges/ …
@vascern@ERNIthaca@eurefnetwork@ErnLung@ern_bond@ERN_eUROGEN@ernica_ern@_ernrita@ern_rare_liver@ELIXIREurope@BBMRIERIC@EatrisEricpic.twitter.com/1udTnYnYTx
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ERN ReCONNET proslijedio/la je Tweet
¿Eres estudiante de
#Medicina? ¿Quieres conocer la#Reumatología de cerca? ¡Hasta el 15 de abril puedes enviar tu solicitud para participar en la jornada 'Open Day'!#SER2020 Más información
https://bit.ly/37VERyI pic.twitter.com/9CacoWF6vJ
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ERN ReCONNET proslijedio/la je Tweet
We are delighted to invite you to register for our first ever European Learning Conference in
#Paris, France, taking place from March 21-22, 2020. https://buff.ly/36elCPf#SED#EhlersDanlossyndrome#hypermobilityspectrumdisorders#MedTwitterpic.twitter.com/7JSG8teB6N
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A study examining the audiologic and cognitive effects of Inflammatory Rheumatic Diseases found that many of the published studies do not involve hearing and speech-language professionalshttps://twitter.com/APSsupportUK/status/1224279149294039040 …
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A review of two Phase 3
#trials evaluating#anifrolumab, an anti-interferon in#systemiclupus#SLE#FAI2Rhttps://twitter.com/contactfai2r/status/1224301506372997122 …
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Every day is
#RareDiseaseDay for 300 million people. Every year, on the last day of February, we make their voice heard.@sil_aps@CharissaFrank@iaiaraia@jhgrunert@veramfpg@SjogrenpowerAna#RareDiseases#Awareness#patients#patientsinvolvement https://www.rarediseaseday.org/article/what-is-rare-disease-day …pic.twitter.com/5KeOaj3Qv0
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ERN ReCONNET proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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These
#EULAR points to consider discuss essential issues and provide a framework for the use of#bigdata in#RMDs https://twitter.com/eular_org/status/1222526567735332864 …Tweet je nedostupan.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The
#RESO#Strasbourg#RareDiseases Reference Center has just won a call to create a new therapeutic education programme (#ETP) for#Sjögren syndrome#patientshttps://twitter.com/CRMR_RESO/status/1222199055184474112 …
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ERN ReCONNET proslijedio/la je Tweet
#ejprd INTERNAL#call
on #clinicaltrials n#statistics

https://www.ejprarediseases.org/index.php/clinical-trials-met-dem-projects-call/ …
#ern#science#rarediseases#innovation#methodology@cranio_ern@ERN_RND@ern_reconnet@EpiCARE_ERN@Metab_ERN@TransplantChild@ErnEyeEU@ERNGuardHeart@_ERNRITA@ern_rare_liverpic.twitter.com/wMA44WneBI
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What is your experience of
#care
The H-CARE #Survey will help#EURORDIS -#RareDiseases#Europe to know more about your views and experiences of the#health care you receive for a rare or complex disease.
anonymous,
available in 23 languages,
only 10 minutes to completehttps://twitter.com/eurordis/status/1220360022179360769 …
0:24Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
ERN ReCONNET proslijedio/la je Tweet
Vote for your favourite photo to win the EURORDIS Photo Award 2020 by 18 February! Submit your vote at https://blackpearl.eurordis.org/photo-award/ The winning photo will be announced during the EURORDIS Black Pearl Awards ceremony on 18 February.
#EURORDISAwards2020pic.twitter.com/h3i8riu3XT
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The
#Sjögren Big Data Consortium is an international, multicentre registry based on worldwide data-sharing cooperative merging of pre-existing databases from leading centres in clinical research in Sjögren’s syndrome from the five continents
#phenotype#diagnosis#ESSDAIhttps://twitter.com/SjogrenEurope/status/1220458301021966337 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
ERN ReCONNET proslijedio/la je Tweet

#ejprd#RareDiseases#Research (#RDR)#challenge#call will be launched soon, there is still time to#register to the#NetworkingEvent, deadline 31 Jan! 4 challenges w 4#pharmas!#academics#SMEs#patientorganizations hurry up
https://www.ejprarediseases.org/index.php/funding-schemes/rare-diseases-challenges/ …
@cranio_ern@ERN_RNDpic.twitter.com/zKMkgACCOa
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ERN ReCONNET proslijedio/la je Tweet
Silvia es miembro de nuestra junta directiva y paciente de referencia de
#SAF en la red europea de referencia@ern_reconnet. ¡No os perdáis el seminario online para pacientes donde participa junto a la Prof. Marta Mosca hablando de embarazo! https://twitter.com/ern_reconnet/status/1220701245461028864 …pic.twitter.com/VZXSaIIH2t
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ERN ReCONNET proslijedio/la je Tweet
Silvia Aguilera
Marta Mosca
Webinar on #pregnancy
in rare and complex #CTDs@sil_aps Save the date
Register
https://twitter.com/ern_reconnet/status/1219884633640374272 …
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Want to know more about speakers of "
#Pregnancy in rare & complex connective tissue and muscoloskeletal#diseases"#webinar? Click
http://reconnet.ern-net.eu/2020/01/23/webinar-pregnancy-rctds/ … and don't forget to register here
http://bit.ly/paweb01 27/01/2020 15.30 CET Take home messages + Q&A session #rCTDs
pic.twitter.com/7vfKW25HAx
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ERN ReCONNET proslijedio/la je Tweet
¡No os perdáis el lunes el seminario online sobre embarazo y enfermedades de tejido conectivo y muscoesqueléticas en el que participaré con la Prof. Marta Mosca!https://twitter.com/ern_reconnet/status/1219884633640374272 …
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Retour sur 2 essais de phase 3 évaluant l’anifrolumab, un anti-interféron au cours du