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Dx Revision Watch
@dxrevisionwatch
Suzy Chapman. Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
UKdxrevisionwatch.comJoined August 2009

Dx Revision Watch’s Tweets

Systemic bias - #Longcovid advocacy needs to look to the #MyalgicEncephalomyelitis history. Talk to long time advocates. Please don't underestimate the systemic bias that is now affecting LC patients. Learn history at ME-International.org
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Real quotes on the record from Royal Melbourne “Post-Covid” Clinic: “we’ve learnt not to over-investigate” “THERE IS NO PATHOPHYSIOLOGY” “patients are just paralysed with hypervigilance” “roadblocks to getting better… (are) anxiety & frustration” #AusPol #LongCovid #MECFS
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This is the incompetence that has made progress in chronic illness impossible. Learning from experience is not guaranteed, when experts are trained wrong they have no way to see through that. The lack of progress in #LongCovid is no accident, it's systemic failure.
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Real quotes on the record from Royal Melbourne “Post-Covid” Clinic: “we’ve learnt not to over-investigate” “THERE IS NO PATHOPHYSIOLOGY” “patients are just paralysed with hypervigilance” “roadblocks to getting better… (are) anxiety & frustration” #AusPol #LongCovid #MECFS
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This - " I was just with some medical students last week, and I talked to them about a patient of mine who had long Lyme. And they said we were taught that that’s not real — and these are current med students." Med ed is failing miserably. We patients are being harmed.
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A doctor’s humbling journey treating long Covid: ‘The second we think we know what we are doing, we fall flat on our face’ trib.al/iN7NQ7z
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“When Addenbrooke’s Hospital in Cambridge upgraded its face masks for staff working on COVID-19 wards to filtering face piece 3 (FFP3) respirators, it saw a dramatic fall – up to 100% – in hospital-acquired SARS-CoV-2 infections among these staff”
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Thinking of & of Maeve today as the first inquest into Maeve's death is held. Sending love, strength & all our support to you. 💙 #MEcfs #pwME
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Replying to @NateHorek
It is listed here exgdcoroner.org.uk/calendar-of-he It is my first time at an inquest. All I can tell you is this is the first of at least two public hearings. The Coroner's Officers should be able to tell you more. They are incredibly busy and, as a public service, likely understaffed.
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🚨I wrote about ME/CFS (chronic fatigue syndrome). The US has millions of people with it & maybe two dozen docs who specialize in it. This medical crisis needs urgent attention, esp. now COVID has hugely increased the number of long-haulers. 1/
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The authors from the study with a false claim that #POTS is psychogenic respond to all of the letters with more false claims. I'll try to outline them here 🧵: 1. They say, "the underlying cause of POTS remains elusive, and regrettably, there is no effective 1/n
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You know your study is very flawed when you get criticism letters from @TeamSRRaj @DavidSGoldstei2 @davidtuller1, Roald Lambrechts and all other co-authors, including myself. Collectively, we told the authors & @Brain1878 that #POTS is not psychogenic! academic.oup.com/brain/advance-
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The new guidelines explicitly *prohibit exercise* in #LongCovid patients with post-exertional malaise/post-exertional symptom exacerbation. #MedTwitter and others, please internalize this!
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Finally! New @WHO guideline specifies: NO EXERCISE THERAPY for #PostCovid patients if they suffer from POST-EXERTIONAL SYMPTOM EXACERBATION. Hope this will protect more patients from becoming bedbound by wrongly applied #rehab measures like GET Please RT For more info see 🧵⬇️
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"It's going to protect YOU..." "It will reduce YOUR risk of a heart attack, cancer, diabetes etc". We see this all the time when it comes to medical treatments and health interventions. I'm going to show why 99.9% of the time this type of phrasing/framing ("YOU/R") is wrong🧵
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