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Prikvačeni tweet
This
@bbcideas video has passed 3m views on Facebook.@bbc ideas has confirmed that it is available for people to use by embedding into their own websites: embed code in my tweet below.#Itstimetotalkaboutdyinghttps://twitter.com/bbcideas/status/981071417914675200 …
3:54Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
This is thought provoking. What can be done to support carers once the full-time occupation of caring ends in a death? That void is new territory for them. Like retirement without the joy, anticipation or planning.https://twitter.com/jaq421/status/1224987313421373440 …
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Letter in Student BMJ c1981: a leukaemic child died suddenly while Mum was absent. The doctor who had to tell her apologised for weeping. 'If you aren't with your child as he dies, you'd want him to be with a person who would weep,' she wrote. 'Never apologise.'
@Sister_Medicinehttps://twitter.com/Clareycoco/status/1224824146678439936 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
This sounds fab! North East writers - take a look.https://twitter.com/hshaddock/status/1224754640966815744 …
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Inspired by
#GlobalPalliativeCare study day run by@APMStudyDays today. 'For us, to die is to suffer.' Time for action, world leaders.#storiespic.twitter.com/50f9vDM8mp
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Kathryn Mannix proslijedio/la je Tweet
A great-aunt of mine graduated
@WeillCornell with an M.D. degree ~1900. When my grandfather broke his leg 11 places, other drs. wanted to amputate. She managed it, saved the leg, he did great. In my house growing up, her name was like the name of God.#NationalWomenPhysiciansDayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Kathryn Mannix proslijedio/la je Tweet
Right. There’s loads of us interested in qualitative and mixed methods in healthcare. I’m astounded at the ability of twitter to connect! So-what should I do next? Set up a zoom?
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Kathryn Mannix proslijedio/la je Tweet
Where are all the
#qualitative researchers interested in healthcare??? If you’re out there please contact me!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Kathryn Mannix proslijedio/la je Tweet
Registration open & call for
#abstracts We are delighted to announce registration is now open for PCPLD Conference 2020! Abstracts are invited on any topic relevant to#PalliativeCare for people with learning disabilities. Early bird rate available http://pcpld.org/events-and-con …pic.twitter.com/QmqWPEWa9B
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I hope your brother will have peace of mind, good company, and excellent control of any symptoms. Wishing you well for this sad, important time together.
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Spiritual care: people may have spiritual, religious or non-religious but existential concerns. They may feel awkward to mention this. Ask. Remember chaplains have huge experience & won't 'push' religion; they can be v helpful in contemplating the void.
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Children: let them visit. Encourage them to ask questions. Give them clear, factual answers. Show them it's ok to be sad. And to still be happy about things. Ensure their schools know what is happening at home. Good resources at
@cbukhelp@winstonswishPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Doing the dying: it's surprisingly gentle and simple towards the end. Here's a 4-minute description:https://www.bbc.com/ideas/videos/dying-is-not-as-bad-as-you-think/p062m0xt …
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Keeping people informed can be exhausting. Appoint a family comms lead who can make a WhatsApp group or an on-line update site. Google them, there are lots to choose from. Tell people when you welcome visits & when to give him quiet time. Have a front door Don't Disturb sign.
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Emotional care: it's normal to be sad, afraid, angry, grumpy, relieved, impatient & even happy from time to time. It's not normal to be stuck in any of those emotional states. If depression or anxiety are undermining enjoyment of living, ask GP/pall care team for help.
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Common conversations towards the end of life: Thank you. I'm sorry. I forgive you. I wish... I love you. Give him private time with visitors for intimate conversations. We never know when these important conversations are necessary.
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What to say: people get tongue-tied around their beloved dying person. He's still your bro. It's ok to chatter. It's fine to just sit & watch TV together. You could read a book & have companionable silence. If there are things you want to say, ask him if you may. Then say them.
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Bowels: it's hard to strain to move bowels when you're short of breath. Don't let him get constipated in the first place. Keep up fluids (anything he enjoys). If morphine is used, start laxatives the same day & use daily. It constipates everybody!
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Don't be afraid of morphine. It's safe & useful for pain and for breathlessness. The right dose will balance out the symptoms without causing lots of drowsiness although it may take a couple of days to find the balance.
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Ask GP or pall care team to make an Emergency Health Care Plan so out-of-hours GP or paramedics can carry on the current plan of care instead of diverting him into hospital, especially if he wants to stay at home. Ask them to explain the emergency plan to you all, too.
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Medical things: get good symptom management as early as possible. For your brother, this might include management of breathlessness, cough, pain. Get a written plan of what to do if symptoms become troublesome: what to give him, who to call. Have 'in case of need' meds in house.
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