Dermetel

@dermetel

specializing in rare diseases. clinical trials for supplement; &

dermetel.org
Vrijeme pridruživanja: siječanj 2020.
5 fotografija ili videozapisa Fotografije i videozapisi

Tweetovi

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  1. Prikvačeni tweet
    31. sij

    Thank you ! We are excited to start this journey. Follow along to stay up to date with new developments from .

    The non-profit organisation, Dermetel, is launching two Phase I clinical trials that focus on the rare disease, Trimethylaminuria or more commonly known, fish odour syndrome🐠 Click below to find out more👇
    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
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  2. proslijedio/la je Tweet
    prije 17 sati

    I cannot wait to see how these AMAZING advocates will impact the lives of those living with MBC and help end disparities that communities of color experience! They are FIERCE! 💪🏽💪🏾💪🏿

    highlight of our collaboration to empower patient advocates to raise their voices to speak truth to power, educate their communities & end MBC disparities in our lifetime.
    7 proslijeđenih tweetova 25 korisnika označava da im se sviđa
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  3. 4. velj

    Today is and there are lots of ways to help and spread awareness. If you are unable to donate your money, here are 6 easy ways to donate your time.

    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
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  4. 4. velj

    Early diagnoses saves lives 💪🏼

    2:44
    "Cervical cancer is a difficult disease to deal with. We would face stigma and people would gossip about us." After an early diagnosis saved her life, Falesi now shares with her village in Malawi how regular screenings can save others.
    1 korisnik označava da mu se sviđa
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  5. 4. velj

    We’re in 🏃🏻‍♀️🍎

    From Today to Friday Walk at least 6000 steps🚶 Eat one fruit 🍉 everyday, avoid citrus fruits if you have stomach ulcers Drink at least 2 litres of water 🥛 No soft drinks🥤only healthy drinks: smoothies, plain yoghurt etc No junk food🍕🌭 Retweet if you're in Let's go!
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  6. 3. velj

    for . We couldn’t agree more !

    is *critical* for rare diseases kids don't have until 2025 to wait to stop this nonsense. We need this NOW 📅
    2 korisnika označavaju da im se sviđa
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  7. 3. velj

    Explaining conditions to people who don't have them can be difficult. Thank you @chroniceeileen for sharing this!

    Today is Awareness Day. Find out more as a explains what the debilitating disease actually is. by
    1 korisnik označava da mu se sviđa
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  8. 3. velj

    We absolutely love this trailer and can't wait to see this movie highlighting a boy growing up with . Has anyone else seen "Treading Water" yet?

    Love is in the air, can you smell it? This story is about a condition called "Trimethylaminuria" or "Fish odor symptom". "Treading Water" is a movie about a love story of a sensitive boy (Mica) whose rare disorder and eccentric...
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  9. 3. velj

    Stay healthy twitter fam ❤️😉

    On , why not check out our article on cold prevention?😷👇
    2 korisnika označavaju da im se sviđa
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  10. 3. velj

    : We hope everyone is enjoying their . Did you know people with usually avoid coffee as it is high in choline? Here's our favorite dupe! What coffee substitutes have you found that you love?

    1 korisnik označava da mu se sviđa
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  11. 2. velj

    👏🏻👏🏻👏🏻

    “What if we lifted up scientists and doctors the same way we lift up professional athletes? What if we supported the world’s best & brightest researchers working on the next breakthrough treatment?” via &
    3 korisnika označavaju da im se sviđa
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  12. 2. velj

    Having a can be isolating, but we have been so encouraged to see such a strong community of online. works with rare skin and metabolic diseases; and we can't wait to make new friends.

    2 korisnika označavaju da im se sviđa
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  13. 2. velj

    Just some very important footage of this adorable dog to brighten everyone's day. We feel you Stella.

    0:37
    This dog is a whole mood
    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
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  14. 2. velj

    Not a bad day to have a birthday 😉. Thank you and for all you do in the community.

    Happy Birthday to Andy Shay (). Thank you, not only for your commitment to serving the Rare Disease Community but also for your commitment to serving our country!
    3 korisnika označavaju da im se sviđa
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  15. 2. velj

    Happy and day 02.02.2020 ! Are you looking forward to the show as much as we are?

    4:29
    Is it time?
    1 reply 5 korisnika označava da im se sviđa
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  16. 2. velj

    What a great idea, or i-tea-a😉, to bring people together on . If you're in the area, grab some ☕️ and meet others in the community.

    An event not to be missed if you can get to Cambridge. Join for ☕️ and 🍰 on February 29th, as part of
    2 korisnika označavaju da im se sviđa
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  17. 2. velj

    Outstanding infographic about , funding, and available. Thank you for sharing this.

    February is rare disease month. Did you know that in order to be classified as a rare disease there must be less than 200,000 cases? has just a little over 200 identified cases making it VERY rare. Look for lots of posts this month as we work to bring awareness.
    1 korisnik označava da mu se sviđa
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  18. 1. velj

    So happy to see more awareness and inclusivity 😊

    'A great move in creating awareness, especially as when I was diagnosed there was very little seen of my condition.'
    1 korisnik označava da mu se sviđa
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  19. proslijedio/la je Tweet
    31. sij

    David is the only person in the UK with the , occipital horn syndrome. He discusses his experience of having an invisible illness and his hopes for the future in

    18 proslijeđenih tweetova 40 korisnika označava da im se sviđa
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  20. 1. velj

    Connection and community are important. Building a network of people that understand what it's like to live with a rare disease is a priority for us. ❤️

    2:28
    "What does it take to live to 100 or beyond? The answer is not what we expect." Watch Susan Pinker's full TED Talk here:
    1 korisnik označava da mu se sviđa
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