David Rose

@davidrose88

Working with 👨🏻‍💻Ambassador for 🗣 Rare disease patient 🧬 Changemaker

London, England
Vrijeme pridruživanja: veljača 2011.

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  1. Prikvačeni tweet
    22. sij

    Very excited that I’m part of the campaign - a very exciting initiative. Watch this space 🦓

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  2. proslijedio/la je Tweet
    5. velj

    If you're looking for some - head over to our back issues of Rare Revolution Magazine. Full of insightful content. 14 main issues and 2 supplement editions - plenty of reading to get into...

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  3. proslijedio/la je Tweet
    4. velj

    Today is - please take a moment to check out our edition, which came out in the summer of 2019. Open here: Full of insightful content from a range of stakeholders.

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  4. proslijedio/la je Tweet
    4. velj

    Re-watching this very interesting documentary following the lives of undiagnosed patients seeking treatment and diagnosis. Have you seen it? 🧬

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  5. proslijedio/la je Tweet
    3. velj

    It only takes a minute to subscribe to our rare disease magazine 💻📲 Head over to: As well as getting notified quarterly when the new edition comes out, you’ll also get a weekly newsletter packed with interesting news and tips 💡

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  6. proslijedio/la je Tweet
    2. velj
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  7. proslijedio/la je Tweet
    2. velj

    An event not to be missed if you can get to Cambridge. Join for ☕️ and 🍰 on February 29th, as part of

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  8. 29. sij

    It’s been 1 week since the launch. Time has flown by! If you haven’t done so already, head over to:

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  9. proslijedio/la je Tweet
    28. sij

    We always love to see your canine and feline friends. Who's got a good to share with us? :)

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  10. proslijedio/la je Tweet
    28. sij

    Our good friends over at have a new website: well worth checking out their drug-re-purposing event they have coming up on the 24th February in London.

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  11. proslijedio/la je Tweet
    23. sij

    Did you know 1 in 17 people in the UK are affected by a rare disease? is a campaign to help the voices of those with rare diseases be heard! Check out the exhibition at the today through to Sat 25 Jan.

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  12. proslijedio/la je Tweet
    27. sij

    Caroline Harding & Nicole Boice are powerhouses in the genetic and rare disease space. For both, a very personal why saw them switch their respective high profile careers for a life of advocacy. Click here:

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  13. proslijedio/la je Tweet
    27. sij

    Should be an interesting watch: The Gene Revolution: Changing Human Nature

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  14. proslijedio/la je Tweet
    22. sij

    Very excited that I’m part of the campaign - a very exciting initiative. Watch this space 🦓

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  15. proslijedio/la je Tweet
    25. sij

    5 weeks to go until 2020 on 29 February. Check out this press release for the latest information on this year’s campaign.

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  16. proslijedio/la je Tweet
    26. sij

    A great initiative from - please do check out the campaign 🦓🦓🦓

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  17. proslijedio/la je Tweet
    25. sij

    I’m intrigued as to how many of my Twitter friends fall in the Rare Disease category ? How many conditions of the 6>8K diseases would be covered? If you fit the criteria and are happy to share please post and add your condition and the

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  18. proslijedio/la je Tweet
    25. sij

    I hope he’s got a valid Oystercard. 🐰

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  19. proslijedio/la je Tweet
    24. sij

    I am super excited to announce, I am one of the 17 changemakers involved in a new campaign. ⁣⁣ ⁣⁣ The campaign launched at . 17 artists have created 17 pieces of inspired by those living with a rare disease.

    Emma is sitting in her powerchair in front of a yellow background with writing in the top left corner "I am number seventeen". Emma is wearing a white shirt with pink leopards and black skinny jeans. She has her dark brown hair down just below her collarbones.
    A yellow background with text "I am ambitious, optimistic, adventurous, resilient. I am number seventeen."
    A painting of a hibiscus flower. The colours are pinks, greens and reds.
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  20. proslijedio/la je Tweet
    24. sij

    is a free exhibition at gallery@oxo, helping the voices of those with rare diseases be heard. Visit tomorrow 25 Jan 11am-6pm to find out about the changemakers living with a rare disease who are sharing their experiences.

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  21. 24. sij

    gif to show the 17 change makers for the campaign to raise awareness of

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