david godbold

@david_godbold

NetApp GEM, Foreign Affairs (apprentice ALS Warrior)

Washington, DC
Vrijeme pridruživanja: prosinac 2011.
31 fotografija ili videozapis Fotografije i videozapisi

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  1. 3. velj

    As a I wish to honor all those fighting to , especially my -my wife, without whom I wouldn’t have got to watch .

    In honor of , salutes fans and their loved ones who have been impacted by . is dedicated to finding a treatment for . Retweet and tag those you want to honor in the fight to !
    3 proslijeđena tweeta 11 korisnika označava da im se sviđa
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  2. 2. velj

    Oh wait! They’re busy, FDA just approved Palforzia (first peanut allergy drug). Is this a single threading organization or a large, multi-faceted and critical government department?

    Brainstorm /Nurown: The FDA has its hands tied due to current policy. So change the policy !!. Get policy makers, the FDA and Brainstorm in a room and work it out together. Do it next week...or is there something more important than a conveyor belt of death for over 150 years ?
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  3. 30. sij

    Keep this image on your desk , its those pesky 300k sufferers waiting to learn of an executive decision to make available. You could be a hero, and a potential could even win some 300k extra votes!

    6 proslijeđenih tweetova 10 korisnika označava da im se sviđa
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  4. 30. sij

    Great presentation! Amanda's sad yet compelling story - from the heart, but will it get to the right audience that can make happen for all us ?

    Take 19 minutes out of your day to watch my friend Amanda Stevens at TEDxBigSky tell the stories of and others (me included) as we fight for access to treatments for .
    4 proslijeđena tweeta 17 korisnika označava da im se sviđa
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  5. 30. sij

    This on the same day news that US life expectancy has improved (by a month). I and my and mates would love to have that prospect ,

    There is a treatment called Nurown that has been proven to be effective to fight ALS, but it is stuck in clinical trials. There are 30,000+ people with ALS that desperately need access to Nurown. Please RT this to spread the word.
    6 proslijeđenih tweetova 12 korisnika označava da im se sviđa
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  6. 26. sij

    Those of us in training for the (4 x 237ml Formula/day to stay alive) invite and friends to experience first hand living with as we await our orders. .

    5 proslijeđenih tweetova 8 korisnika označava da im se sviđa
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  7. 24. sij

    So true. We ask ourselves continually - where did we go wrong? What the hell triggered this? Missing so much activity. Yes, F U (my sentiments entirely)

    Odgovor korisnicima @elsiejo22955940 @SteveFDA
    So many healthy people are getting :( I miss mountain-biking I miss snowboarding I miss wakeboarding I miss running I miss ...
    1 proslijeđeni tweet 8 korisnika označava da im se sviđa
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  8. 24. sij

    WoW! Such praise; thank you Meghan. Its you, your fearless leadership, and 's unique and compassionate culture that made 15 so easy - and rewarding.

    Happy 15th anniversary at to the inimitable ! What an incredible impact you have made on all of us in USPS!
    10 korisnika označava da im se sviđa
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  9. 20. sij

    Remember, bureaucrats and the business’ they regulate only ever make economic decisions - ignoring emotion

    Odgovor korisnicima @tekaywalk @SteveFDA i sljedećem broju korisnika: 5
    I doubt whether they even scroll through our desperate tweets. It would seem that, for FDA, ALS patients are not more than collateral damage 😢.
    1 proslijeđeni tweet 5 korisnika označava da im se sviđa
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  10. 20. sij

    Boris Johnson: Accelerated Assessment/Access Review for Motor Neurone Disease (MND / ALS) treatments in the United Kingdom. - - Sign the Petition! via OK, I know its UK, but why not advance a cure globally?

    1 reply 5 proslijeđenih tweetova 6 korisnika označava da im se sviđa
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  11. 20. sij

    We and 'have a dream' too. We dream of waking up (every night) to a world where treatments like are proven and accessible to all. Its 2020, time to .

    1 reply 8 proslijeđenih tweetova 20 korisnika označava da im se sviđa
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  12. 20. sij

    Agree, there's a lot of sadness to go 'round, ALS is a devastating disease not just for but their caregivers and families. That makes for a lot of votes, too.

    How sad it has become that this is what we have to do, beg for help on social media for our loved ones who suffer with diseases, like , that have treatments with potential stuck in trials.
    2 korisnika označavaju da im se sviđa
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  13. 19. sij

    That’s going to be a ‘needle in haystack’ challenge.

    I encourage everyone to submit a Award nomination for an elected official who is truly deserving:
    Prikaži ovu nit
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  14. 19. sij

    Careful what you wish for, there’s literally thousands of us out here, all with a story to tell. Sadly most not with a happy ending, but we’re trying to change the last chapter.

    Raising awareness of what Lou Gehrig disease really is. That’s my topic for this week and I encourage anyone who know or has experience with this disease to give me their feedback on it🙏🏽
    1 reply 1 proslijeđeni tweet 3 korisnika označavaju da im se sviđa
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  15. 17. sij

    At 73 I wasn't planning a career change, but getting diagnosis changed all that. Dealing with the beast every day, so sending my CV to Johns Hopkins (vs. Barnum & Bailey) .

    8 korisnika označava da im se sviđa
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  16. 16. sij

    Without chains hopefully?

    Remember how you rocked the car in the snow... back and forth... not getting anywhere but you had to keep it going... back and forth... them there's a magic moment when you go forward. Am I getting that feeling in the fight vs ALS this week?
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  17. 15. sij

    Close hauled and asleep? I'm a pALS with new PEG tube; post op instructions say angle of (sleep) attack should be 30-45 degrees. Now we're pointing-and sleeping better, my track to .

    1 korisnik označava da mu se sviđa
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  18. 13. sij

    🏊🏿‍♂️☝🏾💪

    By my calculations over 10 million people alive today have been affected by ALS. So I have an ask: 1. Raise your 🖐️ to let us know who you are 2. Let's do that dual-following thing 3. So you can see what we are up to 4. And hopefully join us so we can finally say:
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  19. 9. sij

    This makes total sense, and should go without saying. I'm grateful for all the mentorship I've received...

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  20. 29. pro 2019.

    Nice job! Setting another new benchmark for all of us

    0:12
    Did someone say Winter? YES. Was someone told they have ALS 3 years ago? YES. Did someone just ride 6 miles? YES. Do we all feel hopeful? YES.
    3 korisnika označavaju da im se sviđa
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