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cyberjennifer's profile
Jennifer Skillen
Jennifer Skillen
Jennifer Skillen
@cyberjennifer

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Jennifer Skillen

@cyberjennifer

PhD student looking systematically at medicine, neuroscience and the NHS. My personal blog: https://cyberbarn9.wordpress.com 

Gloucestershire
Joined May 2011

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    1. Jennifer Skillen‏ @cyberjennifer Oct 3

      @EMISGroup @ptaccesshelp Just heard from patient who clicked on her condition "recurrent subluxation of shoulder" and got results for cystitis in women, recurrent miscarriage and abdominal pain in children. Your app isn't fit for purpose!

      1 reply 0 retweets 0 likes
    2. Patient Access‏ @ptaccesshelp Oct 3
      Replying to @cyberjennifer @EMISGroup

      Hello Jennifer, When a patient clicks the 'more info' link next to a problem in the medical record is takes them to http://Patient.info  search for that condition. While the results you mention are present you can see that are beneath the correct result https://patient.info/search.asp?searchterm=recurrent+subluxation+of+shoulder&searchcoll=All …

      1 reply 0 retweets 0 likes
    3. Jennifer Skillen‏ @cyberjennifer Oct 3
      Replying to @ptaccesshelp @EMISGroup

      So are you saying that it is okay to include incorrect results as long as you have the correct ones in there too?

      1 reply 0 retweets 0 likes
    4. Patient Access‏ @ptaccesshelp Oct 3
      Replying to @cyberjennifer @EMISGroup

      It is a search list so will produce a ranked list of likely results if there is no exact match. In the example you've provided the search returns results that the match the terms for shoulder, before matching on the word 'recurrent'.

      1 reply 0 retweets 0 likes
    5. Jennifer Skillen‏ @cyberjennifer Oct 3
      Replying to @ptaccesshelp @EMISGroup

      Run the same search in google and every result is about shoulders. Why would patients want to use your search results over google's when google is more accurate?

      1 reply 0 retweets 0 likes
    6. Patient Access‏ @ptaccesshelp Oct 3
      Replying to @cyberjennifer @EMISGroup

      Every result on http://Patient.info  is written and peer reviewed by our clinical content team, following The Information Standard guidelines and viewed by an audience of over 18m patients and health professionals every month.

      1 reply 0 retweets 0 likes
    7. Jennifer Skillen‏ @cyberjennifer Oct 3
      Replying to @ptaccesshelp @EMISGroup

      I don't doubt that, but that isn't the problem, it is inappropriate search results that is the problem. The results themselves might be accurate and peer reviewed, but that alone doesn't make them appropriate.

      1 reply 0 retweets 0 likes
    8. Patient Access‏ @ptaccesshelp Oct 3
      Replying to @cyberjennifer @EMISGroup

      I’ve flagged this for review and we will look at adding a message before the link so patients are aware. Unfortunately as trusted space, we can’t link to content that we can’t verify (i.e google)

      1 reply 0 retweets 0 likes
      Jennifer Skillen‏ @cyberjennifer Oct 3
      Replying to @ptaccesshelp @EMISGroup

      As a 'trusted space' you should be linking to accurate AND appropriate information. This is the same problem that I have already brought up with regards to Lentigo linking to sexually transmitted disease and circumcision. Your app is a joke with patients.

      6:12 AM - 3 Oct 2018
      1 reply 0 retweets 0 likes
        1. New conversation
        2. Patient Access‏ @ptaccesshelp Oct 3
          Replying to @cyberjennifer @EMISGroup

          Hello Jennifer, I’m sorry you feel that way. We have made a number of changes based on the feedback you’ve provided us with previously, include a change to the results for Lentigo. We’ll be continuing to listen to patients and making sure we react to suggestions.

          1 reply 0 retweets 0 likes
        3. Jennifer Skillen‏ @cyberjennifer Oct 3
          Replying to @ptaccesshelp @EMISGroup

          Thank you for listening to patients and making changes (although the Lentigo one hasn't filtered through) but wouldn't it be better to change the algorithm rather than making tweaks? If 'trusted' search results are not relevant, patients will go to google anyway.pic.twitter.com/7UPUu2Wc6i

          0 replies 0 retweets 0 likes
        4. End of conversation

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