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FAST thanks GeneTx Biotherapeutics and Dr. Scott Stromatt for offering insight on GTX-102, the investigational ASO for the treatment of Angelman syndrome. A recording of this webinar is available at http://CureAngelman.org/webinar Learn more 2/15 on http://ClinicalTrials.gov by 2/15.pic.twitter.com/7X9Pq2lNhO
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FAST is thrilled to share the news that GeneTx Biotherapeutics, a subsidiary of FAST, has been cleared by the FDA to start a clinical trial on GTX-102, the first potentially disease modifying therapy for Angelman Syndrome. Press Release: https://tinyurl.com/u6mpetg
#cureangelmannowpic.twitter.com/A5t0meAIBP
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Still trying to explain Angelman syndrome to your family and friends? Still trying to convince them it CAN be treated? FAST wants to make it easier to share the science and tell the story of how we CAN and WILL
#CureAngelmanNOW.https://youtu.be/B6BM5oCyuKUHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Congrats to
@AnavexLifeSci on their receipt of a U.S. Patent on their small molecule Anavex 2-73. http://tinyurl.com/sp7mycf "methods of treatment for neurodevelopmental disorders including Rett syndrome, autism spectrum disorder,#AngelmanSyndrome..."#cureangelmannow#fastfundedpic.twitter.com/yPIydPgKT1
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FAST is COMMITTED to our resolutions! We are dedicated to creating the change we wish to see in bringing life-changing treatments for Angelman Syndrome to clinical trial.
#CureAngelmanNow Don't wait! Create your#CAN2020 fundraising page today. Visit http://CureAngelmanNow.org .pic.twitter.com/qZgnco49gb
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The 2020 Cure Angelman Now Community Challenge is LIVE. Create your 2020 fundraising page today at http://CureAngelmanNow.org . It is as easy as 1) Create, 2) Personalize, 3) Share! 2020 is our year.
#CAN2020#TogetherWeCAN#CureAngelmanNOW#Resolutions#OurYearpic.twitter.com/zIczFpDq59
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2019 was incredibly memorable thanks to YOU! Wouldn't you agree that our community is hands down the BEST? We look forward to all that is to come. Stayed tuned for a special announcement tomorrow!
#CureAngelmanNow For more pictures from 2019, visit https://www.flickr.com/photos/cureangelman/albums …pic.twitter.com/pzSz1BL9TUHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
*SCIENCE SUMMIT ANNOUNCEMENT* GeneTx, in partnership with Ultragenyx, Inc,. has announced that their gene altering ASO therapy will be headed to clinical trial in the FIRST half of 2020!
#fastSUMMIT2019#fastGALA2019#cureangelman#cureangelmannowpic.twitter.com/ETIgmFJt1s
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Neuren Pharmaceuticals, Inc. announces their drug NNZ-2591 will begin phase 1 trials in Australia with Phase 2 trials in the US in the second half of 2020!
#fastSUMMIT2019#fastGALA2019#FASTcantstopwontstop#cureangelman#cureangelmannow#rarechromo#genetherapy#rarediseasepic.twitter.com/IrfebEb7tA
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Ionis Pharmaceuticals has announced their ASO will be headed to clinical trial in the 2nd half of 2020! We have been watching the dramatic & beneficial affect of these therapies for other disorders. Now it is our turn.
#fastSUMMIT2019#fastGALA2019#cureangelmannowpic.twitter.com/TS1eyppeE2
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#FASTSUMMIT2019 A quote from Allyson Berent, Chief Science Officer of FAST that reveals how, regardless of age, ALL humans living with AS may very well benefit from gene replacement or gene altering therapies.#CureAngelmanNow#agedoesnotmatter#FastSummit2019pic.twitter.com/YRxMgWyt76
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A huge thank you to Michigan Trout Addicts for choosing FAST! And another huge thank you to Joshua and Chelsea Coffey Smith for coordinating this connection. We appreciate your hard work in helping us
#cureangelman! Our community is awesome!... https://www.facebook.com/cureangelman.org/posts/10157162879412954 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Take a moment to view this wonderful video.
#CureAngelmanNow#Target https://www.facebook.com/cureangelman.org/posts/10157158048497954 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The Global Angelman Syndrome Registry is a fantastic resource for those recruiting for research and clinical trials. Be sure to check that you have consented to be contacted if you want to be involved. https://www.facebook.com/cureangelman.org/posts/10157116114447954 …
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FAST Canada! Great work Noah Firestone.
#CureAngelmanNOW https://obj.ca/article/luxe-bistro-firestone-family-host-inaugural-benefit-find-cure-rare-disorder-angelman …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Back by popular demand- the International Angelman Day collage squares! Add these to your favorite photos and share them on social media to help raise awareness of Angelman syndrome.
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Check out the 2018 FAST Gala video! Starring Dr. Jim Wilson, Dr. Art Beaudet, Dr. Edwin Weeber, Dr. Scott Dindot, Dr. David Segal, Colin Farrell and the gorgeous Angelman community! https://youtu.be/CHwwl_WsMc8 https://youtu.be/CHwwl_WsMc8
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Barb Bailus PhD helps you understand the power of your donations in her first blog post as our new scientific communications officer
#CureAngelmanNowhttps://cureangelman.org/fast-welcomes-new-chief-scientific-communications-reporter-barb-bailus …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
IAD is less than a month away, time to get your shirt, plan your event, raise money, raise awareness!
#cureangelman#cureangelmannow...https://app.salesforceiq.com/r?target=5c487c3b4cedfd007d77cc3f&t=AFwhZf04wThq_X8y8kaCZibr6KpDEcxFXLetpsTFh1PfJj6SIoMY-EOoM93Tya9RW2Viw-MiMLFCoNcQL8xCPg_6O4i5J0Grqofre2wrOU5m44ujm6GIUv2_XBfJ9tiaYz-n4HaNfWtK&url=https%3A%2F%2Fwww.customink.com%2Ffundraising%2Fawareness-month%3Fref%3Doutbound%3Dcshirai …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Have you signed up to the Global Angelman syndrome Registry? Over 1000 families around the world have. This is your chance to be counted and help inform research. This short video will give you some tips to get started.https://www.facebook.com/cureangelman.org/posts/10156918647182954 …
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