No, she means patient-centered. Honestly, we don’t intervene to make the parents feel better. We really are here to take care of the children and we feel extremely passionate about it
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CARES started a hashtag called
#parentalrights. Did you see it? Or this attached flyer, where they make it pretty clear that the parent's right to assign a gender to their CAH kids via surgery is in jeopardy? Who else would it be about, since the kids are obviously not consulted?pic.twitter.com/4pjtUxz9rD
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Sorry but -- surgery does not assign gender. Gender identity comes from the individual. And while doctors have no influence on gender. gender affirming care is known to be vital to mental health as learned from the transgender community.
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Replying to @CourtneyKRoweMD @erlohman and
So yes, I respect parents who are advocating to preserve choices and options for their children who are intersex just as I respect parents who are advocating to preserve choices and options for their children who are transgender.
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Replying to @CourtneyKRoweMD @CourtneyKRowe and
They aren't advocating to preserve choices for their child, they are preserving their own right to make choices FOR their child. Hence the Parent's Rights garbage spewing from CARES. Rosie has her options preserved since she can still choose no surgery. Can they all say that?
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As a parent, you also made a choice for your child -- choosing surgery and choosing no surgery are both choices. I am sure you did it with thought, care, consideration, research and a great deal of love. Other parents are asking for the opportunity to do the same.
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Replying to @CourtneyKRoweMD @CourtneyKRowe and
I didn't make a choice, there was no choice to make. Rosie had no medically necessary reason to have a surgery, so we simply didn't have one. That's not a "choice". My non-CAH son Silas also didn't have genital surgery, but I wouldn't call that a choice.
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Sure it’s a choice! Let’s say you were choosing no circumcision for example. That means you’re choosing higher risk of UTI, higher HIV and HPV transmission, higher penile Ca risk. A very reasonable compromise for some families. But still a choice you make on behalf of your child.
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Replying to @CourtneyKRoweMD @CourtneyKRowe and
It’s always very sad when doctors exaggerate the benefits of Circumcision. Really makes sense why little progress has been made in the USA to protect children from irreversible genital alteration, including for intersex kids! Shocking stuff
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Replying to @iamscottee @erlohman and
The full circ conversation is too long for twitter. Pros / cons complex. But any choice in health care is deciding the pros outweigh the cons. Same as deciding for / against Tylenol or abx or ear tube or cleft palate. Parents put a lot of thought & care into decisions.
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"Too long for twitter"? No, it's that you indefensibly ignore #bioethics when you say prevention of non-existent conditions that don't occur before the age of consent (STDs, cancer) or are easily treated non-surgically (UTIs) can justify surgery on a boy w/out his consent. #i2
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