This makes my heart happy! @Breastcancerorg was one of the 1st places I visited after my mom's diagnosis. When I was diagnosed 4 mths later, I knew they were a trusted site for information (which means a lot online!). Delighted to now be working with them in partnership. #bcsmhttps://twitter.com/Breastcancerorg/status/1221885888709496834 …
-
Wonderful question!
@ciitizen does NOTHING without the individual's consent. Whether people want to use their data to coordinate their own care, share w/ family caregivers, get a 2nd opinion or share w/ research - all sharing (or not sharing!) is controlled by the individual. 1/2
IOW, there is no "backdoor"
Chief Regulatory Officer Deven McGraw (@HealthPrivacy) spoke today at #ONC2020 to explain that access is a key element of personal privacy and her letter also details the @ciitizen stance on facilitating access:https://www.ciitizen.com/privacy/
