A study today purports a healthy lifestyle before Covid was associated with reduced risk of #LongCovid. That doesn't align with my experience at all—that affected individuals were remarkably health conscious and fit
jamanetwork.com/journals/jamai
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Olena Sayko
@coco_chatel
Ukrainian-American. New Yorker. Theater nerd. Left-ish Libertarian-ish. Life on pause due to #LongCOVID/#POTS (07/2022).
New York, USAJoined October 2008
Olena Sayko’s Tweets
This needs to be emphasized — according to , the number of #LongCovid sick after 12 weeks (formal definition of LC) is increasing across the board.
The only numbers they find decreasing are those 'sick less than 12 weeks', which obviously is going to decrease after surges
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Replying to @kathrynsbach @loscharlos and @BenMazer
The only number that declined since July 2022 is the number of people reporting symptoms less than 12 weeks after Covid (makes sense considering number of the UK reported Covid cases went down).
The number of people with long Covid over 12 weeks, 1 year, 2 years, INCREASED.
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I are healthily, didn’t smoke, rarely drank, worked out like a fiend, and slept well. And yet here I am with #LongCOVID. In an information environment where we don’t know what causes post-viral illness or how to cure it, everyone is at risk.
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Song of the Year is not the most popular song or something silly like that. It’s a category that honors the craft of songwriting. Therefore, it is irrelevant if most people had heard the song or not…
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the song of the year is a song i’ve never heard
Biomarkers in #LongCovid: A systematic review:
"Our study found significant associations between specific biomarkers & Long Covid symptoms. Further investigations are warranted to identify a core set of blood biomarkers that can be used to diagnose."
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Hi all, we're recruiting for another #LongCOVID trial, but we need to tap our FULLY RECOVERED or NEVER INFECTED community for this one. If you know anyone who fits this description, let us know! prcovid@mountsinai.org
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Many of these “historic first” awards are seen as accomplishments for the winners rather than a reflection of historic failure on the part of the awarding body. Calling someone the “first Black winner” sounds a lot nicer than saying “traditionally we don’t award Black people.”
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If you’re not getting your facts/analysis on the Russo-Ukrainian War from Ukrainians or those who are deeply embedded with/knowledgeable of the nation & its people, you’re not getting the real story. There are plenty of English-speaking Ukrainians doing the work on Twitter
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Just talked to friend at the front.
Ukraine needs everything. Right now.
Not a month from now.
All these tanks and artillery showing up 3 months from now. Its too late.
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Love the appreciation for Kim Petras, but she's not the first trans woman ever to win a Grammy, that's Wendy Carlos!
Trans synth queen Carlos won 3 Grammys for "Switched-On-Bach" in 1969. She later went on to compose the soundtracks for The Shining and A Clockwork Orange.
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Study: Wealthiest Black Moms More Likely To Die In Childbirth Than Poorest White Moms
In data from California, household income played absolutely no role in determining maternal and infant health outcomes.
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Temelimab study is now recruiting long Covid patients with a positive PCR test not more than two years ago in Rome and Barcelona, in addition to the original sites in Switzerland. Great opportunity, highly recommended if you fit the criteria beta.clinicaltrials.gov/study/NCT05497
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In a twist that should shock no one but enrage everyone, Black #LongCovid patients have trouble accessing what little medical help there is available.
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To leave Kim and Nicki out of the hiphop generational segment was a choice.
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No, this is not sarcasm.
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Anyways, Beyoncé is the most underrated artist of her generation.
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Is there an accounting firm that messed up or something? I do not understand.
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The same industry that’s patting itself on the back tonight for making Kim Petras the first trans woman to win pop duo/group performance at the #Grammys also gave Dave Chappelle another Grammy for his transphobic special “The Closer” so it’s nice to see hypocrisy is alive & well
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So what I’m learning from the Grammys is that Billy Crystal is a nepo baby.
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Stars, they’re just like us.
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Lizzo’s reaction to Trevor Noah saying Beyoncé is at the 2023 #GRAMMYs .
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The first reason to read this book is the title calling the war as it is. Instead of "Ukraine war", "Ukraine crisis" which have flooded the bookstores for the last year.
Coming out soon.
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A long list of #MECFS biomarkers.
H/T 🙏🏾
You could do with having a look
Neither ME nor #LongCovid are psychogenic.
This is not a matter of opinion.
Babbling ‘mind body’ incessantly won’t change that
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Neurologic & psychiatric manifestations of systemic disease are extremely common: first, we must understand the systemic disease. By treating underlying disease, the neuropsych manifestations get also addressed. Second, we must come up with better therapies than CBT & GET. 5/🧵
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What should we do? We must continue to investigate the pathophysiology of complex illnesses and stop assuming that if there is no biomarker, it must be "psych" and also stop using "psych" as a permission to stop looking and stop treating systemic disease. 4/🧵
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Many illnesses don't have a biomarker: RA, Sjogren's, migraine and others. We make diagnoses based on clinical symptoms in conjunction with physical exam, labs and imaging. It's narrow-minded to assume that tests we have now are complete: new & better tests will be coming. 2/🧵
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Those who don't believe the illness is "real" are always going to be asking for a biomarker and using the lack of a biomarker as their evidence that disease doesn't have a physiological basis and therefore, isn't worth studying. We've seen this in #MECFS and #Dysautonomia. 1/🧵
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To those intent on psychologising #LongCovid & #MECFS because ‘there is no biomarker’- let me tell you something as a senior Dr. Many diseases don’t have biomarkers & diagnosis is clinical. Take asthma for example. Symptoms vary between patients. 1/n
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Y’all wanna see a dead body?
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I'm writing a book about gaslighting. When there's a disagreement abt first-person experience, that's gaslighting. If someone says they have physical pain & you say "no you don't", you're gaslighting. Their knowledge on this is superior & you're discounting their credibility...1/ twitter.com/ZacharyGrinDPT…
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If hEDs have called dibs on zebras, can we (POTs) call dibs on manatees (i.e., mermaids)?
My thinking:
- they be salty
- they be mermaids
- standing = challenge
- they're energy efficient
- they like the temperature juust right
#POTS
Someone will followers retweet?
When you make a selection it cannot be changed
Yes.
No.
Maybe.
I don't care.
47 votes4 days left
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It’s probably one reason why people are so quick to risk their health. To them they live in a bubble of “I won’t get sick” and “even if I did get sick, it can’t be so bad. A doctor can fix me up”. To them they don’t see the risk. Everything is harmless and minor, until it isn’t…
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I think most “healthy” people who don’t have a chronic illness, think doctors can cure every ailment. That it can’t ever be that bad, they can just go to the doctors to get whatever it is fixed. The illusion is definitely shattered when you have an illness like #MEcfs #LongCovid
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Hi everyone!
I am very excited to announce that I have finally completed a massive #ME/CFS & #LongCOVID treatment survey entitled "TREAT ME"‼️🎉🤩
If enough people respond thoughtfully, I’m confident we may push research in the field forward!🏇
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These psychologizers will get their comeuppance but they will squirm away from accountability by continually moving the goal posts, redefining “settled science” not to mean “many distinct bio abnormalities observed” to “definitive biomarker” which many mainstream diseases lack…
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If this many clinicians and researchers in various post-viral conditions associated with Long COVID came after me this emphatically, I would simply never be heard from again. People don’t have enough shame.
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My cardiologist sent me this research he co-authored in 2021 for
There’s immense overlap with #POTS #MCAS — this paper clarifies testing and clinical presentation myths vs realities
Any doctor can diagnose, learn the signs! ahajournals.org/doi/10.1161/JA #MedTwitter
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I feel we’re on the cusp of being able to understand so much more about post-viral illness than would have been possible before the pandemic. Don’t be caught flat-footed and double down on the idea that these illnesses are predominantly psychosocial. Data is against you already.
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The embarrassing & deeply sad story of Casper Schmidt, an AIDS denier who published an article in 1984 saying AIDS was psychosomatic.
In 3 decades, there will be articles like these about the individuals saying the same about #LongCovid. History repeats.
discovermagazine.com/mind/the-man-w
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spiegel.de/gesundheit/me-
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As a severely affected #MECFS patient, I was saved by people who didn't duck away because there is no routine care for ME/CFS in the system, but felt "in charge" of me as a person and were willing to give treatment that made sense in my case to make
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We need a 2023 update. RT for best results.
Recovered or not, When did you develop #LongCovid
When you make a selection it cannot be changed
2020 or Earlier
2021
2022
I did not develope LC
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Shit, y’all. The patriarchy strikes again! Did you know it made me feel real bad and then my lil sad lady brain had no choice but to single-handedly raise my SCD40L & VEGF? I sure hope Natalie Shure’s Magic Psychosocial Solutions can get those suckers back down. #LongCOVID
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Know how many established diseases do not have replicated biomarkers? (Hint: a lot).
That does not = psychological. To infer shows astonishing ignorance.
The incessant focus on discredited psychological research is largely reason for lack of funding that establishes biomarkers.
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All else aside, insisting that science of Long Covid, ME/CFS & related diagnoses is settled is nonsense. There isn't a single established/replicated biomarker in either. Plenty of inconclusive findings, all over the map. Role of psychosocial factors raised in research frequently twitter.com/r_prior/status…
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