Why?! This is
WRONG. We must value and save scientific research! #SDGs
Cc: @gatesfoundation @PeterHotez @AAPPres @AmerAcadPeds @GdenisBoston @Amy_Siskind @WomenDeliver @SenateDems @HouseDemocrats
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I wrote to Mary Nix offering to keep the National Guideline Clearinghouse information and data open and available to all. Hopefully I will hear from her and can help. I have experience running public websites at scale. The NGC data is valuable to lots of researchers and doctors.
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Amazing, incredible, keep us posted!
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Will keep you informed! Sounds like Sunlight also has interest in keeping this data open and available to all:https://twitter.com/andmbergman/status/1017919843784421376?s=21 …
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Fantastic, Adam! -
It’s a start. A key question is whether we can get a snapshot of the database so we can build the full functionality of the website. There’s a lot of good formatting and data that will be lost if we can only crawl and scrape what’s currently on the http://guideline.gov site.
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Is there a role for crowdfunding to rebuild the back end?
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Possibly. Right now the question is whether a full database dump can be made available. If so, we can figure out how to find the new website. If not, this is a much more difficult endeavor.
- 14টি আরও উত্তর
নতুন কথা-বার্তা -
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There are a few billionaires who have reputations for being philanthropists, this seems like the perfect project for them Bill Gates where you at?
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The Gates foundation is exactly who we need to help with this. Not, just the cost aspect but his and his wife’s medical research connections.
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We could also @ our representatives and urge them to cut defense spending 0.00000171% to make up for the budget shortfall?
@RepChrisStewart how bout it, Congressman? - কথা-বার্তা শেষ
নতুন কথা-বার্তা -
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From this article: "Nix estimates that the site would cost a 'few hundred thousand' dollars per year to maintain even as a static archive." - Anyone know why it'd be so expensive just to maintain? Sounds high to me. -
@jmspool, anything the tech community can do to help? -
At about $100k/full-time employee, that’s 2-3 people. Guessing the original CMS & content wasn’t created for today’s responsive world, so I could imagine that being full time for 2 or 3 folks. Also, it’s probably housed on in-house servers, so that’s another FT person.
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Also guessing those people are contractors, (few in the Fed government have technical skills,) so that brings the costs to $150k or more per FT person. Estimate doesn’t seem unreasonable to me.
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Just keeping the servers secure enough to keep the Russians and North Koreans out is probably eating up much of the budget.
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I’d be willing to set up a website if I can get a database dump but I don’t see anywhere to download the database on http://guideline.gov ... I have been trying to contact Mary Nix but I’m sure she’s feeling overwhelmed right now.https://twitter.com/drvalking/status/1017897380224499712?s=21 …
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How about with the help of the Wayback Machine
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I don’t think that’s really an option as the treasure would be in a backend database. I believe Wayback only scrapes the static page. (IOW, Wayback would have to enter appropriate queries and capture the results to be of any use here.)
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Wayback is run by the Internet Archive which has assumed responsibility for other databases going extinct, I believe.
- 1টি আরও উত্তর
নতুন কথা-বার্তা -
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