Cystic Fibrosis TrustOvjeren akaunt

@cftrust

We are only UK-wide charity dedicated to fighting for a for those living with .

United Kingdom
Vrijeme pridruživanja: veljača 2009.

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  1. A huge thank you to Dr Mike Gray from for chairing our Strategy Implementation Board (SIB) for the last 7 years. Mike’s commitment to research is staggering, without such dedication we’d know less about CF than we do today.

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  2. Shhhh...come here...yes you...we have a very secret offer. Use the code: SUPERHERO20 when you sign up to any of our events and it entitles you to 20% off entry fee. Sign up now:

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  3. We hear its . If you have and work you often need reasonable adjustments for real sickie days. We've got a great factsheet to help explain all that to your employer:

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  4. January may be over but being a superhero is more than just a New Year’s resolution! To get you inspired, we caught up with Courageous Crusader Janet, who told us of her vertical adventure and what being a part of means to her:

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  5. Our Clinical Trials Accelerator Platform is growing its network of UK centres through a collaborative new scheme, expanding accessibility for the CF community. Read more:

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  6. Project Breathe is part of our ongoing commitment to use health home monitoring to reduce people’s burden of care and give people with greater control over their condition. Read more from our friends at :

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  7. After picking us as their Charity of the Year have written a lovely blog post on why they chose us. Give it a read:

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  8. proslijedio/la je Tweet
    30. sij

    Have any of my cf followers had any reactions to any medicines causing a rash ?

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  9. It's & we know sometimes explaining that your parent has can be difficult. Seb’s and Rosie’s stories encourage conversations about CF & how it can affect the lives of people with the condition and their families:

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  10. We're so excited to start sharing this project. Keep your eyes peeled 👀👀

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  11. The have been a great champion of people with we welcome the appointment of

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  12. We stand with UKCFMA in urging to do everything he can to make the triple therapy available.

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  13. Enterprise Therapeutics are a UK based company & anticipate early-phase trials to run in 2021. To see which are opening this year, visit our Trials Tracker or subscribe to our Clinical Trials Newsletter

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  14. In a recent update, new compound ETX001 shows promise as a therapy for by opening the TMEM16A chloride channel, making it suitable for all regardless of CFTR mutation.

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  15. proslijedio/la je Tweet
    29. sij

    Fantastic meeting with Youth Advisory Group and this evening, lovely to meet young people with and hear their great ideas

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  16. We have published a statement by the UK CF Medical Association with advice to people with and their families on the outbreak:

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  17. And if that wasn’t enough 2% of your order will go to us! So get booking now:

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  18. Dreaming of your next ? Well the team over at have got a extra saving for the community. When you book through this link: you will receive up to 10% off your holiday.

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  19. proslijedio/la je Tweet
    28. sij

    Our 2020 charity of the year is the Cystic Fibrosis Trust – & we’ve set a target of £10,000 to help them fund welfare grants: 💙💛

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  20. Our head of research, Dr Paula Sommer: “It’s exciting that these lab-based studies...are showing such promise, and adding to our expanding knowledge of this devastating bug. We look forward to a time when effective, short courses of treatment are available to treat NTM.”

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