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A huge thank you to Dr Mike Gray from
@NclBNS for chairing our Strategy Implementation Board (SIB) for the last 7 years. Mike’s commitment to#cysticfibrosis research is staggering, without such dedication we’d know less about CF than we do today.pic.twitter.com/FkSS4TQNkt
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Shhhh...come here...yes you...we have a very secret
#TeamCFSuperheroes offer. Use the code: SUPERHERO20 when you sign up to any of our#GreatStrides events and it entitles you to 20% off entry fee. Sign up now: https://www.cysticfibrosis.org.uk/get-involved/fundraising/join-our-fundraising-campaigns/great-strides …pic.twitter.com/vso9cmWPq8
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We hear its
#NationalSickieDay. If you have#cysticfibrosis and work you often need reasonable adjustments for real sickie days. We've got a great factsheet to help explain all that to your employer: https://www.cysticfibrosis.org.uk/life-with-cystic-fibrosis/work …pic.twitter.com/bSEJwHiKsfHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
January may be over but being a superhero is more than just a New Year’s resolution! To get you inspired, we caught up with Courageous Crusader Janet, who told us of her vertical adventure and what being a part of
#TeamCFSuperheroes means to her: http://ow.ly/klst50ybeJQ pic.twitter.com/Oufy8xqLQh
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Our Clinical Trials Accelerator Platform is growing its network of UK
#cysticfibrosis centres through a collaborative new scheme, expanding#clinicaltrial accessibility for the CF community. Read more: http://ow.ly/ksfd50yadLI pic.twitter.com/4xhrYBhGNK
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Project Breathe is part of our ongoing commitment to use health home monitoring to reduce people’s burden of care and give people with
#cysticfibrosis greater control over their condition. Read more from our friends at@RoyalPapworth: https://bit.ly/2GIbrZ6 https://twitter.com/RoyalPapworth/status/1223173996134518784 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
After picking us as their Charity of the Year
@clarityglobal have written a lovely blog post on why they chose us. Give it a read: https://bit.ly/2S408Q9 https://twitter.com/clarityglobal/status/1223182953943007232 …pic.twitter.com/6lLB6xO8eg
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Cystic Fibrosis Trust proslijedio/la je Tweet
Have any of my cf followers had any reactions to any medicines causing a rash ?
@cftrust#cysticfibrosisHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
It's
#YoungCarersAwarenessDay & we know sometimes explaining that your parent has#cysticfibrosis can be difficult. Seb’s and Rosie’s stories encourage conversations about CF & how it can affect the lives of people with the condition and their families: https://bit.ly/37FMLML pic.twitter.com/frELVqimh4
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We're so excited to start sharing this project. Keep your eyes peeled

https://twitter.com/_nxjx_/status/1222924557947953152 …Tweet je nedostupan.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The
@CommonsHealth have been a great champion of people with#cysticfibrosis we welcome the appointment of@Jeremy_Hunthttps://twitter.com/Jeremy_Hunt/status/1222602712010973184 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We stand with UKCFMA in urging
@MattHancock to do everything he can to make the triple therapy available.#cysticfibrosis https://bit.ly/36EgIez pic.twitter.com/Y1XtPCJoqU
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Enterprise Therapeutics are a UK based company & anticipate early-phase trials to run in 2021. To see which
#clinicaltrials are opening this year, visit our Trials Tracker or subscribe to our Clinical Trials Newsletter#Future4CF#cysticfibrosis https://www.cysticfibrosis.org.uk/get-involved/clinical-trials …pic.twitter.com/vAEPIzUXl3
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In a recent update,
@EnterpriseThera new compound ETX001 shows promise as a therapy for#cysticfibrosis by opening the TMEM16A chloride channel, making it suitable for all regardless of CFTR mutation. https://cysticfibrosisnewstoday.com/2020/01/21/experimental-cf-compound-etx001-shows-promise-in-preclinical-studies/ …pic.twitter.com/JLQtuKHuNu
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Cystic Fibrosis Trust proslijedio/la je Tweet
Fantastic meeting with
@cftrust Youth Advisory Group and@EllieMindel this evening, lovely to meet young people with#cysticfibrosis and hear their great ideas@CFTrustYouthhttps://www.cysticfibrosis.org.uk/get-involved/working-with-us/youth-advisory-group …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We have published a statement by the UK CF Medical Association with advice to people with
#cysticfibrosis and their families on the#coronavirus outbreak:https://www.cysticfibrosis.org.uk/the-work-we-do/about-us/statements …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
And if that wasn’t enough 2% of your order will go to us! So get booking now: http://ow.ly/nXMK50y5JDv pic.twitter.com/tZQxjEKaD3
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Dreaming of your next
#holiday? Well the team over at@haven have got a extra saving for the#cysticfibrosis community. When you book through this link: http://ow.ly/nXMK50y5JDv you will receive up to 10% off your holiday.pic.twitter.com/DCbxQG4Ptx
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Cystic Fibrosis Trust proslijedio/la je Tweet
Our 2020 charity of the year is the Cystic Fibrosis Trust
@cftrust – & we’ve set a#fundraising target of £10,000 to help them fund welfare grants: https://bit.ly/2vobJ4J#Charity#CharityTuesday#CharityPartner#CharityOfTheYear#CysticFibrosis#FightingForALifeUnlimited
pic.twitter.com/yy1uF1Dy1j
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Our head of research, Dr Paula Sommer: “It’s exciting that these lab-based studies...are showing such promise, and adding to our expanding knowledge of this devastating bug. We look forward to a time when effective, short courses of treatment are available to treat NTM.”https://twitter.com/AstonPress/status/1221768333680353280 …
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Improve long-term health
Reduce hospital visits
Detect deteriorations
New treatment kills off infection that can be deadly to cystic fibrosis patients - new research by
