We all want to help people with critical illnesses, but we should get beyond the slogans and hyperbole. I don't have access to the latest version (it keeps changing) but i'm worried by what i see.https://twitter.com/califf001/status/973515426859814912 …
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5. Critically ill patients are vulnerable. its critical that if this bill goes through, there is a process for consent to experimentation. Even then extra care is required to make sure desperate people and families understand.
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6. Who will pay? if this opens up a "cash and carry" business for these patients it will recapitulate previous "snake oil" experiences in the US. This is especially concerning for cell tx and regen medicine where unproven therapies are already being peddled for cash.
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7. FDA policy already recommends access when a pt can't participate in a trial. We should focus on access in the context of learning which treatments work. The results of uncontrolled cash access to experimental tx are predictable. there is a history here worth reading
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8. in summary we should continue to strive to find the right match for experimental therapies for critically ill patients that also informs future generations so they can benefit with evidence that enables coverage. This bill doesn't seem to do that.
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What's your opinion on what
@AntibeThera have accomplished after their successful phase 2 trials vs naproxen ?Thanks. Twitter will use this to make your timeline better. UndoUndo
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