BDFA

@BattenDiseaseUK

The Batten Disease Family Association's aims to raise awareness, to support families and to fund research into potential treatments and ultimately a cure.

United Kingdom
bdfa-uk.org.uk
Joined January 2011
164 Photos and videos Photos and videos

Tweets

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  1. retweeted
    Sep 10

    Just to let my fellow families affected by that I am thinking of you all.

    8:47 AM - 10 Sep 2015 · Details
    2 retweets 2 favorites
  2. retweeted
    Sep 8

    Our fantastic people make delicious cakes to raise money for Family Association

    6:54 AM - 8 Sep 2015 · Details
    2 retweets 1 favorite
  3. Sep 8

    The closing date for conference bookings is the Monday 14th September. We cannot guarantee accommodation after...

    1 retweet
  4. retweeted
    Sep 8

    Queen Bee Abbey enjoying her new Swing with Sister Kyra yesterday, making a difference !

    3 retweets 4 favorites
  5. retweeted
    Sep 7

    Sign up for

    1 retweet
  6. Sep 7

    could you make a difference to a small charity working towards a world without opportunity

    1 retweet 3 favorites
  7. retweeted
    Sep 4

    If you haven't heard of pls ff and RT if you have heard of it pls RT for Awareness

    12:08 AM - 4 Sep 2015 · Details
    4 retweets
  8. retweeted
    Sep 7

    Gene therapy holds promise as blindness cure

    2 retweets
  9. retweeted
    Sep 5 Llanllwchaiarn, Wales

    Thank you , the vest has arrived ready for next week's .

    2:41 AM - 5 Sep 2015 · Details
    2 retweets 2 favorites
  10. retweeted
    Sep 3 Llanllwchaiarn, Wales

    This month Im running and cycling 110 miles to raise funds & awareness for . Pls support

    View summary Hide summary 2 retweets 2 favorites
  11. retweeted
    Sep 2

    Orphazyme proudly participates in for new treatments of & related lysosomal storage diseases

    1 retweet 1 favorite
  12. BDFA followed , , and 3 others
    • Johnny Martin
      @farmer_johnny2

      One of Cambridgeshire's finest beef farmer. Have 3 amazing children and a fantastic wife...and not forgetting the two wonderful dogs.

    • CrowdTHotel
      @CrowdTHotel

      Design High Quality Screen Printed Tees for Your . Zero Risk. Zero Upfront Cost. We Directly Ship to Your Customers. You Keep The Profits.

  13. retweeted
    Sep 1

    my favourite charity

    10:24 AM - 1 Sep 2015 · Details
    View conversation Hide conversation 1 retweet 1 favorite
  14. retweeted
    Sep 1

    What are the key criteria allowing a drug to be eligible for accelerated access?

    4 retweets 1 favorite
  15. retweeted
    Sep 1

    The AAR is the govts initiative examining how to improve access to transformative medicines and medical technologies

    6 retweets
  16. retweeted
    Sep 1

    If some people abuse personal health budgets does that mean personal health budgets are a bad thing? Not necessarily

    Personal health budgets are a flawed idea. Huge waste of money at a time when NHS is already v stretched for funds
    4 retweets 2 favorites
  17. retweeted
    Aug 31

    Ollie's Army Family Fun Day 19th September at hope to see you there

    9:11 AM - 31 Aug 2015 · Details
    15 retweets 6 favorites
  18. retweeted
    Sep 1

    BATCure €6M, 14 EU institutes incl , led by , working together for new Batten treatments

    View conversation Hide conversation 2 retweets 4 favorites
  19. retweeted
    Aug 30

    thank you for supporting Ollie's Army & raising awareness of a rare disease with no cure

    2:30 AM - 30 Aug 2015 · Details
    13 retweets 56 favorites
  20. retweeted
    Aug 30

    Our beautiful girl enjoying herself yesterday, why her.. why

    2:25 AM - 30 Aug 2015 · Details
    6 retweets 7 favorites

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