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The worst thing about my experience of #LongCovid is the cyclical crushing of hope in full recovery. No matter how cautiously that tower of hope is built and how preciously it’s guarded from collapsing, it does, and u have to start all over again. This in itself is so exhausting.
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A lot of the health system is geared to ACUTE medicine, while a lot of health conditions are CHRONIC. Sadly, QUALITY OF LIFE + MID-LIFE ailments do not really register in a chronically under-funded and increasingly unequal healthcare system. New metrics & diagnostics should help.
Society overall seems to be disconnected with the reality of the human condition. Disability and ageism are the two forms of discrimination we will all experience. We will all grow old and develop health conditions.
