Everything happened so suddenly that it sometimes feels like I watched it happen to someone else. CT Aug 21. Met my doctor Aug 27. Pre-op Aug 29. Major surgery Aug 30. Dozens of staples held my gut together until Sept 10. I’ve experienced more pain than I ever thought possible.
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This week in cancer: the most generous
@ZivaBranstetter came by for a wonderful visit shortly before moving to Washington. Best. Boss. Ever.@ByardDuncan checked in about a weekly Trader Joe’s run. Love that I can count on him every Sunday!Show this thread -
The glorious
@CocaColaChola came all the way up from LA with the lil one over the wknd to hang out me and make me food. I cherished every moment, especially picking out a hat. I went on an awesome walk to a new coffee shop with my friend and neighbor@Cristinakim830.Show this thread -
Met with
@PatrickMichels and kicked around some great project ideas.@Cristinakim830 then came by with a ridiculous amount of food that I’ve already started devouring. Our friend Nadia joined in! Thought we’d watch tv but wound up catching up on life. Because I’m still living.Show this thread -
And!
@Blackamazon flew in. From London. And got a lil spot right up the street from me so she can come over and hang out and help me do things laundry, which are still a challenge because I can’t lift too much weight.Show this thread -
For a while, I felt like I was on my own. We moved to a new city a few months ago with few friends and no family. But I’m realizing that brand new friends and co-workers, as well as a fly-in and drive-in crew, are my support system. And we’re all surviving together. I’m blessed.
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Today in cancer: my hair started to fall out for the first time. Not sure what took so long. I had a moment, and then it was ok. I then had another moment. And it was, again, ok. I haven’t lost close to all of it yet. And I’ll be a cute ass bald bitch anyway.
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After my moments, I picked up
@Blackamazon and we spent the day grocery shopping, making short ribs, and doing my laundry. And talking. And laughing. So, all in all, a few hairs short of a perfect day.Show this thread -
Today in cancer... the exhaustion from chemo is setting in, but I just watched my
@NewsHour segment about MVM holding children in that unmarked Phoenix office. Not bad.pic.twitter.com/SDlw0tRxQm
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Back at the office today and am very excited about some responsive records and stuff but.... I got a card from
@MinorityPostdoc and it out the biggest smile on my face. Thank you.Show this thread -
My iPhone suggested directions to my cancer center as soon as I got in my car today. This feels like a creepy violation of my privacy,
@AppleSupport. I don’t even use Apple Maps. It’s disturbing that this app, which I can’t even remove from my phone, is tracking me in this way.Show this thread
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I would recommend creamy sauces if you can. I cooked a lot of those for my stepdad when he was going through chemo.
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I know I’ve never even remotely liked Greek yogurt but can’t seem to get enough of it these days! With a little sumac and lemon it’s my go-to now.
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The thought of pizza made me nauseous. It's odd, cuz I love pizza - but chemo can change ur tastes in odd ways. Most people also get a weird feeling drinking cold stuff. After awhile I just sipped it. That one is tough to explain to people who never had chemo. Goes away though :)
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I feel the same way about shrimp. I’ve always loved it, in any form, but don’t even like seeing a photo of it these days.
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For me meat tasted like dog food. I could still taste it but...dog food? What I loved was pickles, tomatoes with salt, and things that were salty and sour. I ate a lot of tomatoes...lol
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I put capers on everything!
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I never thought of that!
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My sister loved Rebecca Katz’s cookbooks that focused on recipes for cancer patients, and we all benefited. The food is delicious, but mostly Katz understands the odd ways bodies react to treatment, and her recipes are built around that...
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Katz’s Mineral Broth is the most delicious broth I’ve ever had, and makes anything you add it to healthier and more delicious. https://www.rebeccakatz.com/magic-mineral-broth …. As always, thank you for your honesty and holding you in the light.
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My friend
@PalmTreesnGz sent me that book! And my friend@Cristinakim830 just borrowed it to try out a recipe
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Oh good! It really is a wonderful book. I’m glad you’re surrounded by loving friends—in addition to us virtual ones.
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