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aral's profile
Aral Balkan
Aral Balkan
Aral Balkan
@aral

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Aral Balkan

@aral

I mainly post on my blog at https://ar.al  (RSS: https://ar.al/index.xml ) and interact on my Mastodon https://mastodon.ar.al . Please follow me there.

Terra firma
ar.al
Joined December 2006

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    1. Gulnaz K.‏ @gkhusainova Aug 6
      Replying to @ElaineEdwardsIT @PrivacyMatters and

      Very interesting, thanks for sharing this!

      1 reply 0 retweets 1 like
    2. Privacy Matters‏ @PrivacyMatters Aug 6
      Replying to @gkhusainova @ElaineEdwardsIT and

      As you’re in the EU .. there are a number of remedies available to you. Happy to have a chat (am not a lawyer, just an experienced privacy pro). I’m Sure Daragh my also help with a chat?

      2 replies 0 retweets 3 likes
    3. Gulnaz K.‏ @gkhusainova Aug 6
      Replying to @PrivacyMatters @ElaineEdwardsIT and

      That would be great! Let me DM you today-tomorrow. Thanks SOOOOO MUCH for all the help

      1 reply 0 retweets 1 like
    4. Paul-Olivier Dehaye‏ @podehaye Aug 6
      Replying to @gkhusainova @PrivacyMatters and

      Happy to help too. We have some experience with ensuring @23andMe respects the law. You have a lot of (free & embarrassing for 23andMe) options through Privacy Shield cc @gedankenstuecke @madprime

      2 replies 1 retweet 2 likes
    5. Privacy Matters‏ @PrivacyMatters Aug 6
      Replying to @podehaye @gkhusainova and

      This is about deleting rather than accessing data.

      1 reply 0 retweets 3 likes
    6. Paul-Olivier Dehaye‏ @podehaye Aug 6
      Replying to @PrivacyMatters @gkhusainova and

      I know, but you have the right to delete under Privacy Shield if it was improperly processed. It probably was, because no one respects Privacy Shield (unless challenged). I bet you it is not worth the hassle for 23andMe to take a stand on her case if she challenges.

      1 reply 0 retweets 3 likes
    7. Privacy Matters‏ @PrivacyMatters Aug 6
      Replying to @podehaye @ElaineEdwardsIT and

      Of course. But Gulnaz could also go straight to the DPA.

      1 reply 0 retweets 2 likes
    8. Privacy Matters‏ @PrivacyMatters Aug 6
      Replying to @PrivacyMatters @podehaye and

      Wow. #23andMe “Our laboratory will retain your genetic information and a randomized identifier on their secure servers for a limited period of time, 10 years pursuant to CLIA regulations.” https://www.bloomberg.com/news/articles/2018-06-15/deleting-your-online-dna-data-is-brutally-difficult … Time to dig deeper. What a mire

      2 replies 13 retweets 11 likes
    9. Elaine Edwards‏Verified account @ElaineEdwardsIT Aug 6
      Replying to @PrivacyMatters @podehaye and

      A proper cesspit.

      1 reply 0 retweets 0 likes
    10. Privacy Matters‏ @PrivacyMatters Aug 6
      Replying to @ElaineEdwardsIT @podehaye and

      The more I look the more troubling it becomes. I’ll be scrutinising the application of CLIA because it isn’t that clear cut.

      1 reply 3 retweets 5 likes
      Aral Balkan‏ @aral Aug 6
      Replying to @PrivacyMatters @ElaineEdwardsIT and

      Thank you :)

      9:35 PM - 6 Aug 2018
      0 replies 0 retweets 0 likes

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