Very interesting, thanks for sharing this!
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Replying to @gkhusainova @ElaineEdwardsIT and
As you’re in the EU .. there are a number of remedies available to you. Happy to have a chat (am not a lawyer, just an experienced privacy pro). I’m Sure Daragh my also help with a chat?
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Replying to @PrivacyMatters @ElaineEdwardsIT and
That would be great! Let me DM you today-tomorrow. Thanks SOOOOO MUCH for all the help
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Replying to @gkhusainova @PrivacyMatters and
Happy to help too. We have some experience with ensuring
@23andMe respects the law. You have a lot of (free & embarrassing for 23andMe) options through Privacy Shield cc@gedankenstuecke@madprime2 replies 1 retweet 2 likes -
Replying to @podehaye @gkhusainova and
This is about deleting rather than accessing data.
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Replying to @PrivacyMatters @gkhusainova and
I know, but you have the right to delete under Privacy Shield if it was improperly processed. It probably was, because no one respects Privacy Shield (unless challenged). I bet you it is not worth the hassle for 23andMe to take a stand on her case if she challenges.
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Replying to @podehaye @ElaineEdwardsIT and
Of course. But Gulnaz could also go straight to the DPA.
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Replying to @PrivacyMatters @podehaye and
Wow.
#23andMe “Our laboratory will retain your genetic information and a randomized identifier on their secure servers for a limited period of time, 10 years pursuant to CLIA regulations.” https://www.bloomberg.com/news/articles/2018-06-15/deleting-your-online-dna-data-is-brutally-difficult … Time to dig deeper. What a mire2 replies 13 retweets 11 likes -
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Replying to @ElaineEdwardsIT @podehaye and
The more I look the more troubling it becomes. I’ll be scrutinising the application of CLIA because it isn’t that clear cut.
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Thank you :)
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