In the light of the recent news about 23andMe (hint: https://goo.gl/hzcdz7 ), I decided to delete my account and all my data there. The first part was pretty easy, however, the latter is not that straight-forward.
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For example, in order to delete my data, I'm required to send VIA EMAIL "a legible copy of the valid, EU member state-issued identification (e.g. Passport, driver’s license, or national ID card)". That doesn't sound very secure, right?
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In addition, there're apparently some limitation to what you can delete. E.g. "23andMe and our third party genotyping laboratory will retain your Genetic Information, date of birth, and sex as required for compliance with applicable legal obligations.."
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@aral – hey Aral, do you have any suggestions here?4 replies 0 retweets 2 likesShow this thread -
Replying to @gkhusainova
Let me try and amplify this. Under GDPR you should be able to have all your data deleted. How that applies to derived data, I don’t know. You simply cannot get more personal than your genetic data so if GDPR cannot protect you here we have a problem. CC
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Many companies don't actually delete, but just anonymize the data so it can't be traced back to you.
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Anonymisation is a myth unless it involves either aggregation or enough noise that the original dataset cannot be reconstructed via overlapping markers from auxiliary datasets.
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