1/ I did this thread a while ago, but it's worth repeating today: The DEFAULT state for access is one where providers (& their EHRs) control what HIPAA access means, including which apps I use and don't use, what electronic means are made available, etc.
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5/ It's right to be wary of app vendors & to doubt whether their privacy policies are clean. It's right to wonder if anonymized tracking data could be de-IDd It's appropriate for providers to disclaim responsibility for patient app choices.
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6/ But y'all, do you know who else can sell my de-ID'd data to anyone they want to? Take a wild guess...
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7/ (*) Concluding policy postscript:
#actually the policy here is already pretty clear: patients have a HIPAA right to access in the form and format they request, including an API, if readily producible.Prikaži ovu nit
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Arien, Farzad - interested in your take here. IMHO: trying to do more than provide patients with direct access to information about them, but also to give patients the ability to *control* where that information flows. We get stuck on apps (not unreasonably), but there’s more.
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