The ALS AssociationOvjeren akaunt

@alsassociation

The ALS Association National Office / Fighting ALS on every front through research, care services, and advocacy. Community guidelines:

Washington, D.C.
Vrijeme pridruživanja: veljača 2009.

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    I look at 2020 and see thousands of voices from across the ALS community coming together to rewrite the ALS story. We are 1 movement and we will change the world together with you . Let’s do this.

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  2. We join the community and ALS organizations in welcoming Dr. Hahn to his role as FDA commissioner, and we invite him to engage with us in our collective, urgent work to find new and effective ALS therapies. Read more:

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    There is not a red state version of ALS and a blue state version of ALS. There is only ALS. There is not a pro-ALS group and anti-ALS group, there is 1 movement to end ALS. We speak with different words but seek the same future. We fight for each other and will be the cure.

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    4. velj

    is proud to stand alongside , , and as joint signers in support of the ALS Disability Insurance Act to waive the 5 month waiting period for for people with . We are grateful our own is on board!

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  5. The ALS Association partners with the to provide the most accurate and up-to-date resource for information on both federally and privately funded clinical studies focusing on . Find a clinical trial near you:

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  6. 2/ "It is through these collective efforts that we are creating a platform for scientific inquiry that can lead to breakthrough discoveries." -Dr. Hemali Phatnani. VIDEO PART 2

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  7. 1/ "To date, over 3,000 genomic and clinically annotated samples from patients have been sequenced and analyzed, and this dataset, one of the largest cohorts in the world, is available to all researchers." -Dr. Hemali Phatnani VIDEO PART 1

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  10. 🏈🍕Get ready for the with these high nutrition, easy-to-chew recipes including chili and taco dip. Read More:

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  11. We only need 4 more senators to cosponsor the ALS Disability Insurance Access Act to get to 60, when may consider a floor vote. Thank those senators who have already cosponsored & urge those who haven’t to cosponsor today:

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  12. Thank you for cosponsoring the ALS Disability Insurance Access Act. We are grateful for your efforts to help people living with immediately access the benefits they have earned.

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  13. Thank you for cosponsoring the ALS Disability Insurance Access Act. We are grateful for your efforts to help people living with immediately access the benefits they have earned.

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  14. Thank you for cosponsoring the ALS Disability Insurance Access Act. We are grateful for your efforts to help people living with immediately access the benefits they have earned.

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  15. Thank you for championing the ALS Disability Insurance Access Act. We are grateful for your efforts to help people living with immediately access the benefits they have earned.

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  16. The SMART Act would ensure access to crucial breathing and life support devices for people living with . Take action today and tell members of Congress to cosponsor this life-saving bill.

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  17. "Most patients leave this world because of breathing issues. Part of dealing with the challenge is having the tools." Join Tommy May in urging Congress to protect access to noninvasive ventilators. Learn more:

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  18. Make advocacy one of your new year's goals. Sign up today to become an Advocate. You'll receive updates on our policy priorities and lead the fight to defeat .

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  19. 2/ Join Tommy in urging Congress to protect access to noninvasive ventilators. Learn more:

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  20. 1/ "Most patients leave this world because of breathing issues. Part of dealing with the challenge is having the tools." -Tommy May, person living with ALS and ALS Association National Board of Trustees member.

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