ALS Advocacy

@alsadvocacy

ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.

Stanford MedX ePatient Scholar
alsadvocacy.com
Vrijeme pridruživanja: veljača 2009.

Medijski sadržaj

  1. prije 8 sati

    Incredible that they needed a study to figure this out. Even more incredible that they came to a "It's not really my problem," conclusion.

  2. prije 8 sati

    . We still have a problem. A lot of people live somewhere between Massachusetts and Florida and California. A lot. And some wonder why people don't participate in ALS trials.

    2 korisnika označavaju da im se sviđa
  3. prije 8 sati

    . We need to work on the "near you" part...

  4. prije 14 sati

    . day on Capitol Hill Feb 25

    1 korisnik označava da mu se sviđa
  5. prije 20 sati

    I heard the word Rolodex in the webinar today. This is my Rolodex of friends lost to ALS, painted by for the Walking Gallery...

    2 proslijeđena tweeta 13 korisnika označava da im se sviđa
  6. 4. velj

    . Please tell us that Hoosiers will have access to the platform trial...

    1 korisnik označava da mu se sviđa
  7. 4. velj

    Yet when we go to and look for recruiting ALS trials in Indiana, we got zip, nada, goose egg. Please live up to your research mission & the promise of your website & bring ALS clinical research to Hoosiers! 4

    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
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  8. 4. velj

    . The website touts important opportunities for ppl w ALS to be a part of ALS clinical research... 2

    1 reply 1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
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  9. 4. velj

    Does "I'm an expert in ALS" count as a credential. Does "I'm living with ALS" count as a professional title? Cmon. There are smart, interested people w ALS and caregivers who should be embraced at scientific conferences.

  10. 4. velj

    . People w ALS and caregivers included? cc:

    1 korisnik označava da mu se sviđa
  11. 2. velj

    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
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  12. 2. velj

    6 years ago. A super day! Microsoft 2014 Super Bowl Commercial Empowering via

    1 reply 5 proslijeđenih tweetova 14 korisnika označava da im se sviđa
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  13. 2. velj
    Odgovor korisniku/ci

    I see the motivation and broad principles, but I don't see details. Is the recommendation below it?

    1 reply
  14. 2. velj

    There Ought To Be A Law?

  15. 2. velj

  16. 1. velj
    Odgovor korisniku/ci

    Need to greet polling place workers with I AM ALS stickers, too.

    1 proslijeđeni tweet 13 korisnika označava da im se sviđa
  17. 31. sij
    Odgovor korisnicima i sljedećem broju korisnika:

  18. 31. sij

    I predict ALS pot-stirring right before Feb 4 SOTU. I so hope I'm wrong.

    1 reply
  19. 31. sij

    A race against time! Wuhan battles coronavirus

    1 korisnik označava da mu se sviđa
  20. 31. sij

    . , if this talk had been given at one of your conferences, I think you would have shared it w the world on SoMe. Please listen closely & share the message. A thoughtful caregiver deserves it.

    1 proslijeđeni tweet 8 korisnika označava da im se sviđa

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