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New blog which shows what can happen when we are vulnerable & trying to negotiate disconnected services. What can happen when we fall through the gaps can be dangerous if not life threatening. https://allywritesblog.wordpress.com/2018/04/02/twilight-zone-ii-maelstrom-of-mayhem/ …pic.twitter.com/dsRbRSynrq
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Am likely not to survive this so letting people know. My Go Fund Me which has helped me to survive, fund my work, pay my cat insurance etc has been reported as fraud. I am therefore going to go under. I had NO idea accepting help was going to do this.
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Been summoned to an "office interview" next week re Universal Credit. Letter is not downloadable to am left I anxiety with no info as to what this is about.
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Alison Cameron #FBPE Retweeted
Doubt professionals will ever really start valuing lived experience until organisations put their money where their mouth is and start paying at same rates as professionals.
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Alison Cameron #FBPE Retweeted
A 2 or 3 year degree/diploma, arguably doesn't give more any more useful knowledge or insight than lived experience. In fact, it may fill professionals heads with poor quality research information (like the ME trials) and socialise them into harmful & prejudiced attitudes.
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Alison Cameron #FBPE Retweeted
Just to clarify - a RMN course may give different information that is very useful, but overall it is no more useful, just useful in a different way.
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Alison Cameron #FBPE Retweeted
This is really important. Come on
@BEHMHTNHS you are my local Trust too!https://twitter.com/allyc375/status/981620689345146880 …Thanks. Twitter will use this to make your timeline better. UndoUndo -
Alison Cameron #FBPE Retweeted
Fascinating insights into the world of library users.
@Gills_Mum innocent. She loved books but would NEVER have written secret codes in them.
https://twitter.com/i/moments/981617154444447744 … @piponthecommons@allyc375@4AdsthePoet@MMShiells@FWmaternity@Crouchendtiger7Thanks. Twitter will use this to make your timeline better. UndoUndo -
Alison Cameron #FBPE Retweeted
Pains me, they are so discriminated against; homelessness is not classified as vulnerable by LAs and getting any diagnosis for learning disability or any continuity of care while on the street is virtually impossible.
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Alison Cameron #FBPE Retweeted
Absolutely! We tell our stories with our bodies; with our behaviour; with all kinds of things as well as our words. There's a tendency to expect people w lived experience to *keep* telling the story again and again - and not enough real attention to what they have said already.
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Alison Cameron #FBPE Retweeted
Exactly. Lived Experience roles are not similar to support worker roles. They are far more complex and require far more emotional labour and navigation of much more complicated professional dynamics.
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Alison Cameron #FBPE Retweeted
Medical school is lacking patients. If medical schools included patients in developing the curriculum and as teachers, medical school could really teach compassion and skills that current lectures fall short on.https://twitter.com/drjessigold/status/981609295073521664 …
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Insomnia - a chance to indulge in silly cartoons.pic.twitter.com/49F5UUV4mO
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Alison Cameron #FBPE Retweeted
#Canterbury Omg, my heart goes out to this woman
Soo sad. #homelesscrisis#HelpTheHomeless#Tory#austerity is killing people, literally.https://twitter.com/ameobatube/status/976823608784883714 …Thanks. Twitter will use this to make your timeline better. UndoUndo -
Alison Cameron #FBPE Retweeted
Needed > Needy. Citizen > Client. Near Neighbor > Salaried Stranger... I’ll stop now, it’s nearly midnight in Norway;) C
https://twitter.com/welovelb/status/981642268724510720 …Thanks. Twitter will use this to make your timeline better. UndoUndo -
Had a beautiful message from the two MH activists from Croatia whom I met in Lille and FBook messages from Russia, Ukraine, Belarus & Zimbabwe. I do know some lovely people.
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I feasted on cheese and oatcakes courtesy of the wonderful
@MMShiells. I finished it off with MORE cheese - a buffalo mozzarella with some other cheese stuffed inside it, vine tomatoes & basil from@MiRice001 Am going for the almond cake next. Yum.
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Alison Cameron #FBPE Retweeted
I a world expert in traumatic stress disorders & disability/human rights law in area of mental health. Doing my own extensive study & research 15yrs, not hard living in poverty in darklands. I been to a few conferences & can understand everything EXPERTS say, in fact I know more.
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Alison Cameron #FBPE Retweeted
It amazes me how some people with mental health issues know all the types of psych meds & can rattle off their REALLY COMPLICATED names like doctors/psychiatrists. Also scary when I say I don't believe in meds for stress disorders - most get very angry & defensive
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Alison Cameron #FBPE Retweeted
I was studying law at Victoria university before I was raped (was a single mum of 2 kids age 38) I tried to return but couldn't because of my 'mental injury' & grossly inadequate support & health care I am entitled to by law. I contined to study law & expert in that too.
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Alison Cameron #FBPE Retweeted
Ive been told I am not a 'real service user'. Its really horrid cos I dont want to have to justify my experiences to feel like my contribution is valid. And also HATE what it insinuates about service users.
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