That is simply untrue. My guess is that Tom Evans wants the tracheostomy and continued tube feeding so they can take him home and let his disease run its course
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Watching your child die while you know he is starving/suffocating is not a decision that can be forced on a parent. It's not fair to call him irrational for wanting to avoid the situation they are currently in where the kid has gone for over 70 hours like this.
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Replying to @mechaprimate @50degreesam
Since you are not the child's parent it's not surprising that you see all forms of palliative care as largely equivalent outcomes and not worth fighting over since you don't actually have to watch your child go through it.
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Replying to @mechaprimate @50degreesam
The point is the state has no right to force a parent to accept their version of "dying with dignity" over his version because he is the one who has to watch it happen to his kid.
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Replying to @mechaprimate @50degreesam
Of course it is. It's about what rights the state can take away from the parents of a terminally ill minor. Specifically the right to decide how to act in his best interest as they see fit.
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To clarify I don't subscribe to the idea of natural or human rights. What I mean is, this case is about the expectations that certain societal roles come with in a civilized society, in the absence of which said society begins to resemble an authoritarian state
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