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Prikvačeni tweet
Join us on 29 Jan @ 8pm GMT to discuss how patient organisations &
#pharma can work together to ensure people affected by health conditions are meaningfully involved in medicines#research & development#patientengagement#patientinvolvement More info: https://bit.ly/372G6vv pic.twitter.com/Y07M5ncpUh
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Natasha Ratcliffe proslijedio/la je Tweet
Our
@HRCIreland -@SLGInvolvement Tweetchat last night on#IndustryPPI achieved well over 1/4 million impressions. These were the most commonly used words.#HealthResearchMatterspic.twitter.com/XyJhmLx4C2
Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Great to be at
@MHRAgovuk today, along with people affected by Parkinson’s, for Patient Group Consultative Forum meeting to discuss thoughts on ‘biomodifying technologies’ (gene therapy, stem cells, 3D printing etc) - looking forward to hearing from@BioModTech#Involvement#ppiHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Natasha Ratcliffe proslijedio/la je Tweet
Thank you everyone. I hope our tweets raise awareness with the
#Pharmaceutical industry & encourage them to add#patientinvolvement to their 2020 plans! As@Nike would say 'Just Do It!'
#IndustryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Relationships are key to successful long-term partnerships!https://twitter.com/jmdtaylor1/status/1222623704141778944 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A4. Industry needs to embed PPI across the whole organisation, and make it a core part of how research is done. This means investing in teams and resources to support involvement, including training.
@PFMDwithPatient and@eupatients offer training for industry.#IndustryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Natasha Ratcliffe proslijedio/la je Tweet
5 minutes left to tell us who you are!
#IndustryPPIhttps://twitter.com/SLGInvolvement/status/1222610546446434305 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A4. PPI needs to be planned and carried out in line with best practices and principles. PFMD Patient Engagement Quality Guidance sets out key principles and is a tool that can be used to plan and assess PPI activities
@PFMDwithPatient http://bit.ly/2tR2ZE8#IndustryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Maintaining independence is important. How might payment to patient orgs affect this? Sometimes payment can be viewed as negative, which is a challenge for patient orgs
#IndutryPPIhttps://twitter.com/SheuliPorkess/status/1222621283457929218 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Natasha Ratcliffe proslijedio/la je Tweet
A3 THREAD 1 Sharing this ABPI National Voices doc - Working together, delivering for patients - A guide to collaboration between charities and pharmaceutical companies in the UK - sets of 4 key principles
#IndustryPPI https://www.nationalvoices.org.uk/sites/default/files/public/publications/working-together-delivering-for-patients.pdf …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A3. Talk to your communities about what they think about working with industry, and work with them to address any concerns and to develop your policy position and your principles for partnership. Transparency is key.
#IndustryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Natasha Ratcliffe proslijedio/la je Tweet
A2: a) by hearing examples of the way meaningful
#PPI can transform research b) AND THEN BY JUST DOING IT!#industryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
For me, and many others I am sure, the numbers and figures aren't the things that show the most meaningful impact. But I do think that we need to acknowledge that this is the language industry work with and numbers help promote change in senior leadership.
#IndustryPPIPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A2. Seeing evidence that PPI will have a financial benefit - and this evidence is now becoming available. Example here shows potential for 500-fold increase on investment, which can accelerate product launch by 2 years: http://bit.ly/3aP0JOa .
#IndustryPPIPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A2. I think the best way for industry to be persuaded is to try it out for themselves and see what they have been missing out on. Once people work with people affected by health conditions and experience first-hand their valuable insights, they start to get it.
#IndustryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
This is changing though, with release of
@ABPI_UK Sourcebook https://www.abpi.org.uk/publications/working-with-patients-and-patient-organisations-a-sourcebook-for-industry/ … and@US_FDA Guidance http://bit.ly/2t9rGez#IndustryPPIPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A1. Lack of incentive from regulators. Industry look to regulators for guidance, and regulators have been slow to adopt PPI and issue guidance on how to do meaningful patient involvement.
#IndustryPPIPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A1. There has been an assumption that ‘patient-centricity’ equates to meaningful patient and public involvement - not the case. It’s about more than “designing a service or solution around the patient” - it’s about working WITH people - two-way dialogue, co-creation.
#IndustryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hi I'm Tash. I manage the Patient and Public Involvement programme at
@ParkinsonsUK, through which we support researchers across industry and academia to work together#IndustryPPIHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thanks to everyone who is joining the
#IndustryPPI tweetchat this evening. Let us know who you are at the poll below!https://twitter.com/SLGInvolvement/status/1222610546446434305 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Natasha Ratcliffe proslijedio/la je Tweet
5. And here are insights into our joint
@ABPI_UK@AMRC@NIHRresearch 2019 conference Pioneering Partnerships from@_nratcliffe Next one is 16th September 2020.https://medium.com/researchinvolvement/reflections-on-pioneering-partnerships-2019-2e2b3a8cb49a …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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