Stephanie

@ZakkisMom

Stephanie Ann Middleton on Facebook / Heart Mom to Zakki / Possibility Golf Charitable Legacy, Inc. / Mom to Hanz a Pediatric Doctor

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Vrijeme pridruživanja: siječanj 2013.

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  1. prije 8 sati
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  2. proslijedio/la je Tweet
    3. velj

    Today's blog is for care providers: 5 powerful words to help make a big impact with Heart Parents

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  3. prije 10 sati

    Very disturbing statistics that are being deliberately covered up. ?

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  4. proslijedio/la je Tweet
    31. ožu 2019.

    This is the surgeon, who can't be described by earthly words, because he really is a g_d to us. He made life possible for Zakki, and performed a miracle, even though the chances of Zakki surviving were literally a roll of the dice. Thank you for being you!

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  5. proslijedio/la je Tweet
    31. ožu 2019.

    The resilience of Zakki, born with critical has been remarkable. The nurses and doctors worked relentlessly to give him his best chance at life. They answered 1000s of questions, repeatedly. The first open heart surgery is a rollercoaster ride of emotions for the parents.

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  6. prije 12 sati

    Zakki's second open heart surgery, this one for his discontinuous LPA, at 13 months old, was a miracle of miracles by Dr. Russo too. 💞 Done on circulatory arrest, it gave him blood flow to BOTH lungs. He now has 3 stents in his built and connected 9 mm LPA.

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  7. proslijedio/la je Tweet
    1. ruj 2019.

    I'm looking for congenital heart surgeons that are most like Zakki's 1st Heart Hero. Excellent, graceful, humble, skilled, artful imagination, an intuitive feel with delicate and very complex physiology, stays calm with surprises, and doesn't give up. Go World! Name them!

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  8. proslijedio/la je Tweet
    1. ruj 2019.

    Zakki my brave blue baby warrior is turning into a honey of a young man. Recharged on love and hope each day, each hour, each minute. I am so very thankful to all of his Doctors who have continued to spin miracles in Zakki's life, to keep the flame of his life lit!

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  9. proslijedio/la je Tweet
    29. ruj 2019.

    Thankful Every Day for the Pediatric Heart Surgeon who first rekindled the flame of Zakki's critical life ❤️

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  10. prije 17 sati

    CHOP always asks at check in if we have traveled. Lol only to and back, one mile away from home, for their exceptional care 🥰💕💖 Thank you !!

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  11. prije 20 sati
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  12. 5. velj

    I've got a kid with Primary Immune Deficiency and Critical Congenital Heart and Lung Defects, so yeah I'm worried. Measures taken in the U.S. have been criticized in China, where officials said the Americans are stoking fear and overreacting. CDC says....

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  13. 5. velj
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  14. 4. velj

    The observed lymphocyte reduction must be of clinical significance as well as a cytokine stormwith

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  15. 4. velj

    That's a disappointing read. Even the tests for are extremely inaccurate which causes further spread. Nice chart though.

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  16. 3. velj
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  17. 3. velj

    25% of Babies Born with Have Critical Congenital Heart Defects. These Kids Need Miracle Surgeries + Extraordinary Care to Just Survive. Each Day is a Gift + Journey that Requires Lifelong Care. He has had 16 heart surgeries and interventional caths.

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  18. 3. velj

    Sobering Read. Still so much work to do for those born with ALL congenital heart defects. 💔

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  19. 1. velj
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  20. 1. velj
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