Tom Weiser

@WeiserTom

Rare Disease Patient & Difference Maker. Do you because FH Advocate of Awareness

Bellefonte, PA
Vrijeme pridruživanja: kolovoz 2015.

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    prije 5 sati

    This is the most serious form of FH and our children and their families need support and treatment so open heart surgery doesn't happen before they are teenagers.

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  4. prije 13 sati

    🦓 Of the 7000 less than 500 approved treatments. This is why the is so important. Without FDA approval Insurance will not pay for the prescription

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  6. prije 13 sati

    February is ❤ It is amazing how much of a difference there is between gender perceptions of symptoms

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    Do you because Familial hypercholesterolemia (FH) is a common () life-threatening genetic condition causing high Untreated it leads to early & . is a more rare & severe form of FH

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    3. velj

    We are pleased to work with on establishing the FDA’s Rare Disease Day Public Meeting during To register please visit -->

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    3. velj

    February 29th is Rare Disease Day! All month long, we will be supporting rare disease awareness on twitter to help connect you with the rare disease community.

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    February is  is the No. 1 killer in America, accounting for 1 in every 4 deaths each year, according to the Centers for Disease Control and Prevention.

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    31. sij

    Four Uplifting Athletes alumni will square of to become NFL Champions on Sunday Mike McGlinchey and Anthony Zettel for the take on Nick Allegretti, John Lovett, and the

    , , i još njih 3
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    Today is the first day of ❤ 16 years ago I had my first of two Let's celebrate this month the developments within the medical and patient advocacy fields. Do you because

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    🦓 There are 7,000 different kinds of Just over 80% of rare diseases have less than 6,000 patients Do you

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  17. 31. sij

    Let this sink in for a moment...Anthem CEO Bourdreaux makes $14 million...annually I am both jealous and furious at the same time

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  18. 31. sij

    🦓... 1 in 10 people have a ...affecting 30 Million Americans. That number doesnt include Spouses, children, extended family, or caregivers Do you

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