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Vicki HP proslijedio/la je Tweet
#MEawarenesshour The real number of sufferers is unknown due to erroneous beliefs. This is real, serious, debilitating yet adequate funding has yet to be given. Why? Why?Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
Today I have been in an ME crash. It makes one feel very out of it. I have found myself repeatedly pausing to ask myself 'am I still alive?' It's a ridiculous question because clearly I am still alive, but there are moments when the brain properly spaces out and is unsure
.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
#MEAwarenessHour 447 days since I last went outside. Ill for almost 19 years. 39 years old. Completely bedridden. Can no longer stand or walk. No medical help. CBT did nothing. Graded exercise made me worse. This is the reality of#severeME@MattHancock@NICECommsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
#MEAwarenessHour I don't think people understand what counts as exertion. My home help was shocked that sitting chatting to her while she prepared a meal for me wiped me out for days.https://twitter.com/JourneyFog/status/1225149791342034945 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
ME patients experience a worsening of symptoms following ANY activity. This is called Post-exertional malaise (PEM), or ‘payback’. This means that if I choose to spend a few minutes talking to a friend, I’m likely to ‘pay’ for it for hrs, or even days afterwards
#MEawarenessHourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
With ME, either you fit it into your minuscule energy budget, or you don't get to do it. How would you like to stop every activity that matters to you, Francis Collins?
@NIHDirector 13M is#NotEnoughForME Read:#MEAwarenessHourhttps://twitter.com/JourneyFog/status/1225149791342034945 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
Regarding psychological involvement with
#pwme, one common element that I've observed in every ME patient I've interacted with: Grief. This is from the loss of their job, income, social life, hobbies, sports, medical insurance, family, friends, and some case the ability to walk,Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
M.E. is not a rare disease. It effects anywhere from 15 - 30 million people worldwide, yet it receives a fraction of the research funding allocated to male pattern baldness. The neglect of ME patients is one of the biggest medical rights abuses of our time
#MEAwarenessHourPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
The misconception that people with M.E are malingerers is baffling to me. I have never known a bunch of tougher people in my life. You have no idea the mental strength & grit it takes to live every day like this. We deserve so much better than stigma & ignorance.
#MEAwarenessHourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
Having ME is having a psychiatrist tell my partner that I must be exaggerating my illness and for her mental health she should either force me to do more or leave me
#MEAwarenessHour (Dw, she explained all faults with the PACE trial in great detail. Psych backtracked
)Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Vicki HP proslijedio/la je Tweet
Im 23 and I'm living my life stuck in bed and on a couch instead of living my life. I should be saving up to start a family, working. But that all on hold for god knows how long, maybe forever.
#MECFS#myalgicencephalomyelitis#MillionsMissing#MeawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
To those who say
#pwME are faking. You’re right, we are. Every day that we fight, we’re faking that we’re not breaking. Every time we smile & laugh we’re faking that we’re not in agony. Every time we distract ourselves we’re faking that we aren’t terrified.#MEawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
#MEawarenesshour I don't know what it's like to be healthy. Sick with ME since 5-6 & 24 now. Give me a chance, please. I'm very ambitious, creative, compassionate & would love to contribute to society. My whole world is a dark room.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
Four weeks after we returned from our honeymoon, my wife fell severely ill with ME/CFS. We only had one month together as a married couple. She has been bed-ridden ever since.
#MEAwarenessHourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
When I had cancer, I received skilled medical attention which cured me. When my heart became faulty, I received skilled medical attention which is helping enormously. When I got M.E. I got no help at all, we are just left to rot in our beds for decades on end.
#MEAwarenessHourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
#MEAWARENESSHOUR to all around the world suffering from#ME my heart goes out to you
to those like myself, a carer watching daily your loved ones missing out on life I send a hug. This illness is so cruel
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
1. You get ill and lose everything. 2. Everyone is gone. 3. Doctors don't know what is wrong with you. 4. You find out what is wrong and want to fight for research, better understanding of illness etc. 5. You are too sick to fight. Who will fight for ME?
#MEawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
This situation of barely funding an illness that is devastating so many lives is no longer acceptable. Our needs must be addressed, our weakened voices will be heard.https://twitter.com/twoShaws/status/1225133103800209408 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Vicki HP proslijedio/la je Tweet
#ME is a debilitating and life changing illness. There are millions of us suffering around the world yet we still get labelled as lazy or ‘just tired’. This must change, this WILL change#meawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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