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#PwME 4 BioMEdical research
@ValeBodi
Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
MEssland Worldwidencbi.nlm.nih.gov/pmc/articles/P…Joined April 2014

#PwME 4 BioMEdical research’s Tweets

The inventors of insulin sold the patent for $1. On why, one of the inventors said, “Insulin does not belong to me, it belongs to the world.” That was true in 1923 & it’s true today. Yet we’re still fighting to make insulin affordable. Will you join us?
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How f’d are we? Only realists should reply. Seriously asking for everyone with a semi functioning 🧠 left and a moral compass:
When you make a selection it cannot be changed
22 votes6 days left
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Self-management is a struggle for individuals with chronic illnesses. For many, the work involved in managing a chronic illness can feel like a full time job. The multitude of tasks and activities that are required are often not captured by the construct of self-management. 👇🏻
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Viruses have developed various mechanisms to evade the immune system and replicate. One of these mechanisms relies on manipulation of the host metabolism by targeting key metabolic nodes and disrupting critical metabolic pathways. ⁦
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New findings from #MEcfs research in Bergen 🇳🇴: “One explanation may be that a restriction in blood flow during activity means that the cells receive too little oxygen, and that this leaves metabolic traces over time," says Prof. Karl Johan Tronstad. #PwME
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Om nya rön från ME-forskning i Bergen: ”en förklaring kan vara att en begränsning i blodgenomströmningen vid aktivitet gör att cellerna får för lite syre, och att detta sätter metaboliska spår över tid, säger Karl Johan Tronstad.” forskning.no/celler-sykdomm #SvMEcfs #Svmed #vårdpol
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"More recently, patient activism, combined with new data on the underlying biology of the illness, has resulted in changes in treatment guidelines and a renewed focus on ME as a biologically grounded post-viral disease." #MECFS #LongCovid #DecodeME
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Really thorough article from @PatrickFreyne1 in @IrishTimes, with valuable historical account of the medical misogyny towards #MECFS from @b_m_hughes. Plus the text-to-speech button on the page is helpful for #brainfog as well as visual impairments 👍 irishtimes.com/health/your-we
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