UDN

3 years ago today, the UDN PEER held its first face-to-face meeting here at @harvardmed! Learn more about the PEER at http://udnconnect.org/peer  #RareDisease #undiagnosedpic.twitter.com/WIST3yzr90

ICYMI: the UDN Clinical Site @UCLAHealth was featured in the Fall 2019 issue of U Magazine! #raredisease https://www.uclahealth.org/u-magazine/answers-at-last …pic.twitter.com/TXSlglpKuM

The latest issue of the UDN Participant Engagement and Empowerment Resource (PEER) newsletter is now online at http://udnconnect.org/PEER ! #raredisease #undiagnosedpic.twitter.com/NPqLMcWxP0

Did you know there are now 12 UDN Clinical Sites around the United States? Learn more: http://udnconnect.org/sites pic.twitter.com/wIvyB2PKlS

Good morning #ASHG19! Still deciding on your schedule for the day? UDN investigator May Christine Malicdan of @genome_gov is presenting during the precision medicine session @ 9am in 370Apic.twitter.com/VChm9oPNIT

It’s the last poster session of #ASHG19! We have several UDN posters being presented this afternoon.pic.twitter.com/YGRKYzUtZt

Time for posters. Here's the UDN lineup for today! #ASHG19pic.twitter.com/AWsAByryAF

Good morning #ASHG19! There are two UDN talks today- first up, UDN GC Heidi Cope of @DukeHealth will present during the genetic counseling session in 360D.pic.twitter.com/AuEcZ1algV

Counting down the days to #ASHG19! Kudos to all the UDN investigators that had abstracts accepted for the meeting. Now if only we could figure out how to be in two sessions at once!pic.twitter.com/XNrUaMzk1z

Two weeks until #ASHG19 in Houston! UDN investigators will present 6 talks & 19 posters this year. Check out the full list below & at the @genome_gov booth (#227) during exhibit hours.pic.twitter.com/MNqkBbVe2Q

New funding opportunity! Learn more & review the gene list here: https://undiagnosed.hms.harvard.edu/research/funding-opportunities/ … #RareDiseasepic.twitter.com/q3oYky7m5h

One month until #ASHG19! There are >20 UDN related talks and posters this year. Check out the full list below and on our website: http://udnconnect.org/the-undiagnosed-diseases-network-at-ashg-2019/ …pic.twitter.com/CJTX97lvIn

The latest issue of the UDN Participant Engagement and Empowerment Resource (PEER) newsletter is now online at http://udnconnect.org/PEER ! #RareDisease #undiagnosedpic.twitter.com/P0IWukcxo2

Excited to be here at #pm19hms! Tune into the livestream now for the “Hyperindividualized Treatments” panel http://bit.ly/pm19hmslive pic.twitter.com/OTtJfg5szt

Please join us for a live webinar hosted by the UDN MOSC this Thursday 6/13 @ 1pm EST! The MOSC uses fly, fish, and worm models to study gene variants identified in UDN participants. Register here: http://udnconnect.org/grandrounds  #modelorganisms #genomics #Drosophila #zebrafish #celeganspic.twitter.com/4WKAUK1bye

Clinicians & researchers from the @bcmhouston UDN site will be at the @RareDiseases #LivingRareForum in Houston June 21-23! Download the meeting agenda & learn more at https://rarediseases.org/living-rare-forum …pic.twitter.com/JzLwhPW1I1

Another rainy #MarathonMonday here in Boston. Good luck to all the runners, especially UDN PI @Lorehanshan & the entire #running4rare team! #BostonMarathon @RareDiseasespic.twitter.com/EvPfaIqgol

Now online in the Journal of Genetic Counseling special issue on exome sequencing: Zastrow et al. share strategies for following up after non-diagnostic exome sequencing https://www.ncbi.nlm.nih.gov/pubmed/30964584  #GCchat @stanford_CUDpic.twitter.com/IdW1PPeZvU

Thank you #ACMGMtg19 - we learned so much and loved seeing so many new and familiar faces. See you next year!pic.twitter.com/Royyuzef7B

Even poster presentations starting shortly! #ACMGMtg19pic.twitter.com/D7PHdI3WI9